Luciana's Cause
Donation protected
Hi friends and family, I Bob Nicolosi (with the help of my daughter-in-law) created the following GoFundMe, in hopes of raising funds regarding my niece, Luciana Nicolosi, with her upcoming open heart procedure.
On December 28, 2007, Luciana Francesca-Marie Nicolosi was born with an extremely rare Heart Disease known as Critical Pulmonary Arterial Branch Stenosis (CPABS). While some children born with this disease may have only one or two stenosis or blockages, Luciana was born with dozens of these blockages, many of which are deep inside her lungs. If these obstructions aren't relieved, her blood doesn't receive enough oxygen, and high pressures are placed on her heart's right ventricle, potentially leading to heart failure and death. When the blockages occur in her major pulmonary arteries, they can be fixed surgically, but surgery cannot repair the smaller arteries that branch off inside her lungs without causing extensive lung damage. Even after surgery, these blockages will persist about 40 to 60 percent of the time. Due to it’s rarity, there are only 7 Hospitals in the country involved in it’s clinical research: Children’s Hospital of Boston, University of California at San Francisco, Children's Hospital of Philadelphia, Stanford University Medical Center, The Cleveland Clinic, Miami Children's Hospital, and Duke Medical Center. In 2014, based on her surgeon's recommendations the family relocated to the West Coast.
The family now lives in Henderson, Nevada where Luciana has proceeded to have several procedures at Sunrise Children's Hospital. As of this year (2021) Luciana will undergo Open Heart Surgery at The Lucile Packard Children's Hospital in Stanford California.
Thus far Luciana has already undergone 18 medical procedures.
The board of surgeons from the Lucile Packard Children's Hospital reviewed Luciana's rare case and has deemed this procedure medically necessary to prolong her life. Pulmonary Artery Reconstruction (PAR) is the upcoming surgery in which Luciana will undergo. The procedure itself will have Luciana admitted for a 4 week span. The family is trying to come to terms with what is ahead for Luciana. This process alone leaves the family with the struggle of how they will manage financially.
My HOPE is to help my brother and his family especially Luciana not to carry this struggle alone. Any help that you might assist for the family would be greatly appreciated.
On December 28, 2007, Luciana Francesca-Marie Nicolosi was born with an extremely rare Heart Disease known as Critical Pulmonary Arterial Branch Stenosis (CPABS). While some children born with this disease may have only one or two stenosis or blockages, Luciana was born with dozens of these blockages, many of which are deep inside her lungs. If these obstructions aren't relieved, her blood doesn't receive enough oxygen, and high pressures are placed on her heart's right ventricle, potentially leading to heart failure and death. When the blockages occur in her major pulmonary arteries, they can be fixed surgically, but surgery cannot repair the smaller arteries that branch off inside her lungs without causing extensive lung damage. Even after surgery, these blockages will persist about 40 to 60 percent of the time. Due to it’s rarity, there are only 7 Hospitals in the country involved in it’s clinical research: Children’s Hospital of Boston, University of California at San Francisco, Children's Hospital of Philadelphia, Stanford University Medical Center, The Cleveland Clinic, Miami Children's Hospital, and Duke Medical Center. In 2014, based on her surgeon's recommendations the family relocated to the West Coast.
The family now lives in Henderson, Nevada where Luciana has proceeded to have several procedures at Sunrise Children's Hospital. As of this year (2021) Luciana will undergo Open Heart Surgery at The Lucile Packard Children's Hospital in Stanford California.
Thus far Luciana has already undergone 18 medical procedures.
The board of surgeons from the Lucile Packard Children's Hospital reviewed Luciana's rare case and has deemed this procedure medically necessary to prolong her life. Pulmonary Artery Reconstruction (PAR) is the upcoming surgery in which Luciana will undergo. The procedure itself will have Luciana admitted for a 4 week span. The family is trying to come to terms with what is ahead for Luciana. This process alone leaves the family with the struggle of how they will manage financially.
My HOPE is to help my brother and his family especially Luciana not to carry this struggle alone. Any help that you might assist for the family would be greatly appreciated.
Co-organizers (4)
Felicia Nicolosi
Organizer
Wendell, NC
giovanna nicolosi
Beneficiary
Giovanna Nicolosi
Co-organizer
Bob Nicolosi
Co-organizer
Sean Nicolosi
Co-organizer