FOXG1 syndrome is a rare and severe neurological condition affecting children.

Important scientific progress has been made, and gene therapy research has now entered clinical trials. While this brings real hope, families in the UK still face complex journeys and a lack of structured, local support.

FOXG1 UK is a parent-led initiative created to support research towards a cure and to support families affected by FOXG1 syndrome in the UK.

This fundraiser is helping us take a critical first step: creating and structuring a registered UK charity.

Funds raised will be used to:

support and promote FOXG1 research

support UK families with information, guidance and community

️ cover the initial costs required to formally establish FOXG1 UK as a registered charity

Thank you for supporting FOXG1 UK and for helping turn scientific progress into real, lasting support for families.