Cranio Ribbons Ireland
Donation protected
My name is Gwen and this is my son Aaron. Aaron has a condition called Craniosynostosis. His type of Craniosynostosis is Sagital but there is many more.
Craniosynostosis is a birth defect in which the bones in a baby's skull join together too early. This happens before the baby's brain is fully formed.
In Ireland, in most case, Craniosynostosis is fixed by surgery. The surgeon will cut the skull and reshape it. As you can imagine this is a major surgery.
When the diagnose came out, Aaron was 1 and half years old. He finally got his surgery in March 2021, he was nearly 3. The struggle to hear that your child need a major surgery and having to decide if we should or shouldn't.
I am raising funds for Cranio Ribbons Ireland. https://www.facebook.com/craniosynostosisawareness/
So Cranio ribbons Ireland is a cause (not a registered charity) that support parents and kids going through the diagnose of Craniosynostosis, before surgery and after surgery.
They also offer a care package to family for the surgery. That care package include toothpaste, toothbrush, shower gel, shampoo, toys, a teddy matching the warriors scar and a cape, pj for kids, slippers, socks for parents, travel mug, vaseline, book/ puzzle book for parents.
They have supported us mentally by reassuring us ( as they are also parents of Craniosynostosis warrior).
Recently, Cranio Ribbons Ireland has offered a teddy personalize to each kids with their name (see below).
For the month of May, I am doing chocolate bombs and 100% of the proceed will go to this beautiful cause .
My facebook page is www.facebook.com/Chocolateheavenbygwen/
You may purchase the chocolate bombs through my page. If you prefer to donate, you may simply donate through this page.
This cause mean so much to me as it is helping hundred of family during this though time.
Craniosynostosis is a birth defect in which the bones in a baby's skull join together too early. This happens before the baby's brain is fully formed.
In Ireland, in most case, Craniosynostosis is fixed by surgery. The surgeon will cut the skull and reshape it. As you can imagine this is a major surgery.
When the diagnose came out, Aaron was 1 and half years old. He finally got his surgery in March 2021, he was nearly 3. The struggle to hear that your child need a major surgery and having to decide if we should or shouldn't.
I am raising funds for Cranio Ribbons Ireland. https://www.facebook.com/craniosynostosisawareness/
So Cranio ribbons Ireland is a cause (not a registered charity) that support parents and kids going through the diagnose of Craniosynostosis, before surgery and after surgery.
They also offer a care package to family for the surgery. That care package include toothpaste, toothbrush, shower gel, shampoo, toys, a teddy matching the warriors scar and a cape, pj for kids, slippers, socks for parents, travel mug, vaseline, book/ puzzle book for parents.
They have supported us mentally by reassuring us ( as they are also parents of Craniosynostosis warrior).
Recently, Cranio Ribbons Ireland has offered a teddy personalize to each kids with their name (see below).
For the month of May, I am doing chocolate bombs and 100% of the proceed will go to this beautiful cause .
My facebook page is www.facebook.com/Chocolateheavenbygwen/
You may purchase the chocolate bombs through my page. If you prefer to donate, you may simply donate through this page.
This cause mean so much to me as it is helping hundred of family during this though time.
Organizer and beneficiary
Gwen Dillon
Organizer
County Kildare
Elizabeth Kane
Beneficiary
