Clark Norman - The Real Superman (2022)

Our beautiful baby Clark was diagnosed with a rare chromosome disorder called 1P36 Deletion Syndrome at just five months old. It's cruel and pointless and ultimately means that some of Clark's DNA has been 'deleted'.

This results in brain damage / malformation, heart disease, epilepsy, developmental delay, severe learning difficulties, growth delay, limited speech ability, physical disability, sight impairment, hearing impairment, sensory / touch issues and low muscle tone - all of which Clark suffers with.

Nearly all of the things that come naturally to most babies, we are having to 'teach' Clark - playing, rolling, touching his toes, looking and listening, grabbing and holding, the list goes on.

Clark is doing so well and tries so hard at everything, but he is often frustrated by the things that limit him and it's obviously heartbreaking for us to watch that.

Despite his diagnosis, frequent hospital visits, tests, check ups, weekly therapies and daily medications, Clark is the happiest, cheekiest little monkey who brightens everyone's day with his gorgeous huge smile and equally as huge hair.

Our little family love Clark more than life itself and we will never stop helping him reach his amazing potential in all areas of life. However, like most six year old boys, Clark wants to be independent......the next goal for us, when he is ready, is to help Clark learn to walk.

Any donations VERY greatfully received will fund a place for Clark at Footsteps; an amazing charity which give children intense physiotherapy to take their first steps and beyond.

Team 33 are an amazing group who often do incredible challenges for charity......this year I'm joining them and we're walking 28 miles to help Clark take his first steps.

Thank you for reading and THANK YOU for supporting Clark and helping to give him this massive and very special opportunity :) xxx