Castle to Castle ride - A New Hope for Ethan
Spende geschützt
Edinburgh Castle to Windsor Castle .... Please donate and we will enter you in a draw to win a £ 4K Mountain Bike ... please read ....
Nikki ( Ethan’s mum) Mike and I come from the same collection of cousins … me being the oldest and apparently the wisest … if only. You would think Mike being one of the youngest would be the fittest … again if only.
With all our mums or dads being brothers and sisters there has always been a close connection even though we’ve all lived miles apart for most of our adult life. Always together at important family events the bond between us as a family has remained solid.
We have obviously been aware of Ethan’s story since initial diagnosis 2019 and followed progress closely.
With the latest news of the re occurrence of his Ethan’s tumours and the family’s wish and plea to raise funds for treatment Mike and I felt compelled to set ourselves a challenge to raise a substantial amount of money if we could.
Mike and I had connected more closely in the Summer of 2020 due to COVID and had both realised we had a love of cycling, hitting the road for several rides together.
So there was only one thing to do: Plan a ride to raise money for Ethan’s treatment that provided enough of a challenge that would seem worthy of donation and sponsorship.
So here it is. Ride a pushbike from Edinburgh castle to Windsor Castle … Castle to Castle 450 Miles.......
PLUS THE CHANCE TO WIN A £ 4K MOUNTAIN BIKE !!!
The ride will take place early June over 8 days and will be completed by Myself, Mike and my son Jack, who jumped at the chance to help this family cause.
Self-funded we will have a support team along the way and hopefully 1 or 2 guest riders on certain legs ( watch this space )
Nikki ( Ethan’s Mum ), Justin ( Ethan’s Dad ) his brother and sister Finlay and Martha are such a beautiful and amazing family and Ethan’s Illness has ripped their lives apart.
Please help us to help them .....
Plus have a chance to win this Amazing Brand new Mountain Bike worth over 4k ( yes that's over Four thousand pounds ). Every donation over £ 10.00 will earn you a ticket into the draw that will take place Live on Facebook once we cross the finish line in Windsor. Please be aware we can only enter you if you leave your name on the gofundme donation page.
https://www.sussedoutsuspension.co.uk/product/2020-mondraker-foxy-carbon-r-29-150mm-enduro-trail-mountain-bike/
Ethan's story told by his Mum and Dad ...............,
Our beautiful son Ethan was in school preparing for his GCSE's, studying in between his active days of football and basketball. Sport is his passion and a career to date that most parents would be proud of. Player of the season at Crowthorne Cricket Club, Signed for Aldershot academy for 2 years as goal keeper, played conference and academy level at basketball, completed his FA referee certificate to ref games... a real good all rounder at sport. He successfully finished his DofE (Duke of Edinburgh) which included volunteering to coach the U10's Yately basketball team, Learnt new skills and carried out physical exercises such as camping and orienteering over a long weekends to complete the award.
Ethan was at school on Wednesday 2nd of October when he started suffering from slurred speech and minor headaches, he texted me to book an appointment with the local GP to observe these abnormalities and see what could be done, we were admitted to Frimley hospital for a CT scan and were to await the results the following week..... They didn't take that long, a phone call on Thursday evening from the neurologist had confirmed a 4cm brain tumour on his right frontal lobe.
After receiving that phone call and hearing the diagnosis we were completely devastated which left us, his younger brother and sister heartbroken. Initially it was believed that the tumour could be removed completely and his first operation was deemed a success. Unfortunately on scanning post operation a secondary tumour site remained and Ethan was left with having further surgery. We can’t even begin to describe that day and how our world fell apart and that we knew our lives would never be the same.
After the second craniotomy, the GOLD standard of care followed with 6 solid weeks of travelling to London UCLH for radiotherapy and then a further 9 months of chemotherapy which finished in October 2020, not once did he complain of the treatment and stood strong in the face of this awful disease. As a side effect of the surgery Ethan developed epilepsy in December 2019 which changed his day to day life forever.
Throughout this Ethan has just been amazing and has left us feeling humble and proud of how he has taken on this life challenge. His attitude to treatment and trying to continue living life to the full has just amazed us all on top of a rubbish Covid year. His daily routine of taking 26 tablets split over morning and night has regimented his day with an alarm at 8am, 2pm and 6pm to take a mix of vitamins, chemo, repurposed and prescribed seizure medication all this to give our son a a quality of life.
In November 2020 his seizures were becoming daily which we thought were just an imbalance of his seizure medication, we were about to be hit again with more devastating news as his follow up scan has now shown a re occurrence of the tumour. We are beyond devastated, heartbroken but determined not to give up. We are now facing the reality that we have reached the boundaries of treatment options in the U.K. and need to seek help with immunotherapy treatment abroad to give him the best chance in life.
Our research has taken us to Cologne where the best new treatments are happening, the one we are looking into is DCVax which is still in experimental phase but seems the most promising. The cost for this initial treatment is amounting to £150,000 which is way out of our budget and hence we need to start fund raising.
Those Starwars fans would have already noticed the strap line 'A New Hope', we felt it sat well not just for the intent of the raising of money but also his love for the films. Ethan would love to see the photos of support and please donate as much or as little as you can to help us save Ethan and get him the treatment he deserves. We are eternally grateful xx
Nikki ( Ethan’s mum) Mike and I come from the same collection of cousins … me being the oldest and apparently the wisest … if only. You would think Mike being one of the youngest would be the fittest … again if only.
With all our mums or dads being brothers and sisters there has always been a close connection even though we’ve all lived miles apart for most of our adult life. Always together at important family events the bond between us as a family has remained solid.
We have obviously been aware of Ethan’s story since initial diagnosis 2019 and followed progress closely.
With the latest news of the re occurrence of his Ethan’s tumours and the family’s wish and plea to raise funds for treatment Mike and I felt compelled to set ourselves a challenge to raise a substantial amount of money if we could.
Mike and I had connected more closely in the Summer of 2020 due to COVID and had both realised we had a love of cycling, hitting the road for several rides together.
So there was only one thing to do: Plan a ride to raise money for Ethan’s treatment that provided enough of a challenge that would seem worthy of donation and sponsorship.
So here it is. Ride a pushbike from Edinburgh castle to Windsor Castle … Castle to Castle 450 Miles.......
PLUS THE CHANCE TO WIN A £ 4K MOUNTAIN BIKE !!!
The ride will take place early June over 8 days and will be completed by Myself, Mike and my son Jack, who jumped at the chance to help this family cause.
Self-funded we will have a support team along the way and hopefully 1 or 2 guest riders on certain legs ( watch this space )
Nikki ( Ethan’s Mum ), Justin ( Ethan’s Dad ) his brother and sister Finlay and Martha are such a beautiful and amazing family and Ethan’s Illness has ripped their lives apart.
Please help us to help them .....
Plus have a chance to win this Amazing Brand new Mountain Bike worth over 4k ( yes that's over Four thousand pounds ). Every donation over £ 10.00 will earn you a ticket into the draw that will take place Live on Facebook once we cross the finish line in Windsor. Please be aware we can only enter you if you leave your name on the gofundme donation page.
https://www.sussedoutsuspension.co.uk/product/2020-mondraker-foxy-carbon-r-29-150mm-enduro-trail-mountain-bike/
Ethan's story told by his Mum and Dad ...............,
Our beautiful son Ethan was in school preparing for his GCSE's, studying in between his active days of football and basketball. Sport is his passion and a career to date that most parents would be proud of. Player of the season at Crowthorne Cricket Club, Signed for Aldershot academy for 2 years as goal keeper, played conference and academy level at basketball, completed his FA referee certificate to ref games... a real good all rounder at sport. He successfully finished his DofE (Duke of Edinburgh) which included volunteering to coach the U10's Yately basketball team, Learnt new skills and carried out physical exercises such as camping and orienteering over a long weekends to complete the award.
Ethan was at school on Wednesday 2nd of October when he started suffering from slurred speech and minor headaches, he texted me to book an appointment with the local GP to observe these abnormalities and see what could be done, we were admitted to Frimley hospital for a CT scan and were to await the results the following week..... They didn't take that long, a phone call on Thursday evening from the neurologist had confirmed a 4cm brain tumour on his right frontal lobe.
After receiving that phone call and hearing the diagnosis we were completely devastated which left us, his younger brother and sister heartbroken. Initially it was believed that the tumour could be removed completely and his first operation was deemed a success. Unfortunately on scanning post operation a secondary tumour site remained and Ethan was left with having further surgery. We can’t even begin to describe that day and how our world fell apart and that we knew our lives would never be the same.
After the second craniotomy, the GOLD standard of care followed with 6 solid weeks of travelling to London UCLH for radiotherapy and then a further 9 months of chemotherapy which finished in October 2020, not once did he complain of the treatment and stood strong in the face of this awful disease. As a side effect of the surgery Ethan developed epilepsy in December 2019 which changed his day to day life forever.
Throughout this Ethan has just been amazing and has left us feeling humble and proud of how he has taken on this life challenge. His attitude to treatment and trying to continue living life to the full has just amazed us all on top of a rubbish Covid year. His daily routine of taking 26 tablets split over morning and night has regimented his day with an alarm at 8am, 2pm and 6pm to take a mix of vitamins, chemo, repurposed and prescribed seizure medication all this to give our son a a quality of life.
In November 2020 his seizures were becoming daily which we thought were just an imbalance of his seizure medication, we were about to be hit again with more devastating news as his follow up scan has now shown a re occurrence of the tumour. We are beyond devastated, heartbroken but determined not to give up. We are now facing the reality that we have reached the boundaries of treatment options in the U.K. and need to seek help with immunotherapy treatment abroad to give him the best chance in life.
Our research has taken us to Cologne where the best new treatments are happening, the one we are looking into is DCVax which is still in experimental phase but seems the most promising. The cost for this initial treatment is amounting to £150,000 which is way out of our budget and hence we need to start fund raising.
Those Starwars fans would have already noticed the strap line 'A New Hope', we felt it sat well not just for the intent of the raising of money but also his love for the films. Ethan would love to see the photos of support and please donate as much or as little as you can to help us save Ethan and get him the treatment he deserves. We are eternally grateful xx
Mitorganisatoren (3)
Paul Chadwick
Organisator
England
Jack Chadwick
Mitorganisator
Michael Gray
Mitorganisator