In early November 2018, after struggling with undiagnosed symptoms that were affecting everyday life, Lewis Boyett was diagnosed with Amyotrophic Lateral Sclerosis. For those who may not know, Lewis is the loving husband to Lauren Boyett and their four young girls: Alexis, Madelyn, and twins Gabriella and Izabelle.
Amyotrophic Lateral Sclerosis, also known as ALS or Lou Gehrig’s Disease, is a neurodegenerative disorder that paralyzes the body, but leaves the mind intact. People with ALS, on average, live between two to five years. Currently, there is no cure; the goals for treatment are to manage symptoms, providing supportive care, improving quality of life, and prolonging survival.
This young family has been working through many difficulties associated with this rapidly progressing disease, which hasn’t been easy. Their whole world has been completely flipped upside down. The sad news of the condition and prognosis came shortly after what was the happiest time in their lives. Lauren and Lewis just recently purchased their first home and started nesting to make it everything they could ever dream of.
Since being diagnosed, many changes have been made to the family’s daily life. Lewis is undergoing multiple medical treatments, such as infusions, which keep him bedridden for days at a time and therefore unable to work or care for his children. The family needed to hire full-time help for their children’s care. Lewis is unable to use his feet to walk or drive and requires assistance with even the smallest tasks in and outside of their home. They already had to make many costly accommodations to their home to help Lewis in his everyday living, such as a portable power chair, a ramp leading to their front door, and a shower chair with handles.
Lauren has become the sole provider for their family and a pillar of support, staying strong throughout all her pain. She still maintains a full- time career in an effort to maintain a degree of normalcy for her children and husband.
Although these beautiful little girls are witnessing the changes their father is going through, they thankfully cannot fully comprehend the severity of the situation. However, the progressive nature of ALS will become more noticeable eventually, and they will inevitably suffer the long-term consequences of watching this disease affect their father.
Because there can be significant costs for medical care, equipment, and home health care, the family is hoping they can find assistance in continuing to prepare their home, to ensure Lewis has the best quality of life possible and enjoy every moment with his girls.
We wanted to show our support for this family and hope that you may find it in your heart to do the same.
Thank you for your prayers, love, and support. To maintain as much normalcy as possible in their everyday lives, we ask that you respect the family’s wish for privacy during this difficult time.