Bobbys dream of Disneyland

Bobby was diagnosed with a rare genetic form of kidney disease called Alport syndrome from a very young age at first we were fobbed off by doctors for nearly 1 year and told it wasn’t just a water infections because at that point the only symptoms were literally just blood in the urine Bobby was prescribed antiobiotics for almost a year when he didn’t have an infection this has damaged he’s immune system and made him immune to most antibiotics so now he struggles with normal sickness due to not benefiting from normal meds... he has regular hospital trips at great Ormand st hospital and xrays and blood test too he will remain under them until he is no longer a child, unfortunately this is a condition that currently has no cure and eventually he will need an a double kidney transplant and will have to go on to dialysis that’s without having to first find a kidney match which they won’t  do this until he hits final stage kidney failure so at the minute he is currently at stage 3 kidney failure so we’re desperate on raising as much as we can to get him to Disneyland in Orlando while he still is in a position to go and enjoy it .....This disease effects the vision and hearing and most children will loose sight and hearing without warning it’s a horrible thing but we just want to make things as great as we can bobby is constantly asking to go to Disney land he has always  wanted to go to Disneyland but due to him also being poorly a lot and constantly being in and out of hospital me and he’s mother have taken a lot of time of work and just aren’t able to save enough to take him as of yet! He’s such a lovely bubbly child who has been through the wars and had a rough time with he’s illness.... He’s lately been so down because of being bullied at school and feeling very targeted so as a treat I am trying to now raise enough to add what I have saved to take him on the trip off a life time in between he’s next set of hospital trips and stays...