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Beth's Belfast Marathon Relay Runners and Walkers

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My niece Beth has been diagnosed with Cockayne Syndrome, a rare inherited Genetic Disorder. I am hoping to raise funds for the amazing charity “AMY & FRIENDS” who will be a great support to Beth and her family on this journey and every donation will help. Thank you in advance for your contribution to this cause that means so much to us as a family.
More information about Amy and Friends: Amy and Friends supports children and their families who suffer with Cockayne Syndrome and Trichothiodystrophy. We offer advice, support, advocacy and purchase equipment when necessary.

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Ruth McLarnon
Organizador
Amy and Friends
 
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