Baby Nila

Thank you so very much for visiting this campaign. It will be with a heavy heart to welcome sweet baby girl Nila into the world. Though her time here will be all too short, It's important that her memory stays forever. **10/06 Update: Nila didn't have a heartbeat this morning, the ultrasound confirmed that she has passed.***  Erin & Keith will be taking some much needed time to heal.  We, the friends and family, are asking for any donations to help cover final expenses; While this is usually a time for baby showers, It's devastation for a family. We thank you, from the bottom of our hearts! 

Nila has Trisomy 13, It occurs in 1 in 16,000 newborns.  Trisomy 13, also called Patau syndrome, is a chromosomal condition associated with severe intellectual disability and physical abnormalities in many parts of the body. Individuals with trisomy 13 often have heart defects, brain or spinal cord abnormalities, very small or poorly developed eyes (microphthalmia), extra fingers or toes, an opening in the lip (a cleft lip) with or without an opening in the roof of the mouth (a cleft palate), and weak muscle tone (hypotonia). Due to the presence of several life-threatening medical problems, many infants with trisomy 13 die within their first days or weeks of life. Only five percent to 10 percent of children with this condition live past their first year.  Nila is not expected to make it past 48 hours after birth due to her certain issues.