BA is a life-threratening condition in infants in which the bile ducts do not have normal openings or do not exist.
The next step after her schedualed biopsy will be an exploratory surgery followed by the Kasai procedure. This surgery only has a success rate of about 40% and it is not a cure. Mostly, it buys time until the child gets a liver transplant. 80% of patients will need a transplant before they turn 20.
Time is of the essence; the surgery has a better success rate when the infants are 3 months or younger. We are all praying for a succesful outcome!
Life is fragile and will continue to be so.
Mila has already been placed on special formula to help her absorb fats and vitamins since her liver isn't processing them like it should. She has been prescibed vitamins as well. None of this is covered by the insurance provider and they are expensive.
We are expecting a number of medications after the procedure is preformed paired with a strict diet typical for BA patients.
While we are fortunate to live in the vicinity of great hospitals, the commute back and forth is costly on our one fixed income. We have had a trying past couple of months as Mila's dad recently had to take a traveling postion a few hours from home to provide for the family.
The traveling postion contract is coming to an end in the next month and everything is quite overwhelming.
Though we are heartbroken our for our baby, we also feel incrediably blessed to have her, she is an absolute gift.
Prayer is certainly of the greatest need right now. Also, if you feel led to soften our financial burden we would truly recieve it as a blessing from God.
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