Edie's Dwarfism Medical & Travel Fundraiser

Sometimes life gives us blessings in ways we weren't expecting. I know God has great plans for Edie and her family. This October they will be traveling to  Delaware to try and find out more about Edie's rare type of dwarfism. Any contribution would be appreciated to help with travel, medical, and time away from work for this sweet family. The paragraph below was written by Edie's mom. 

-Dwarfism-
It’s a word that never entered my mind when I found out we were pregnant with our rainbow baby Edie Katherine. At 32 weeks the doctor told us that Edie had skeletal dysplasia. It’s an umbrella term for dwarfism with over 300 different types. Half of these aren’t survivable past birth. They assured us she had a survivable type but we were shocked. We have no family history of dwarfism and we don’t know anyone with dwarfism.

We still don’t have a diagnosis because her physical features aren’t associated with the most common types of dwarfism. Her genetics doctor believes she has Spondyloepimetaphyseal Dysplasia (SEMD) but he isn’t sure which type. This October we have appointment with two skeletal dysplasia specialists (ortho and genetics) in Delaware and we are super excited to get more insight on Edie’s type of dwarfism.