My son Armand was recently diagnosed with GM1 Gangliocidosis (Type II), a recessive genetic metabolic disorder with no known cure or proven treatment.  He also has another genetic mutation of the GBJ2 gene, which affects his hearing.  We are exploring clinical trials and possibly experimental treatments in hopes of slowing (or, even more hopefully) stopping the progress of his disorder until a cure or more proven treatment can be found.

The money collected will go towards his medical expenses including but not limited to specialist visits, hearing aids, drug treatments, travel expenses (his clinical trials are located at the University of Minnesota, while we live and work in Ohio), walkers, orthodics, and further expenses from testing and follow-ups.

Supporters can also help by supporting some of the organizations and charities that have helped us so far, including hideandseek.org, the Ronald McDonald House, the Global Gene Project, and the University of Minnesota Fairview Hospitat Pediatric Medical Team.