A marathon for Jaxson
Donation protected
So I've decided I'm going to run a marathon before Christmas. This is a challenge I've always wanted to do, but never been able to find the motivation to fully commit to it. What better motivation, than raising money for this beautiful boy and his family.
I'm aiming to raise as much money as I can for Jaxson. To help him on his journey and to help Zach and Louise give him the best life possible.
When I first heard about Jaxson being diagnosed with Prader Willi Syndrome, it hit me hard, I couldn't believe it. Being a parent myself, and knowing Zach and Louise personally. I just couldn't begin to imagine how they felt and what they were going through. They're two of the nicest selfless individuals around, and I know all they want out of life now, is to be able to provide there boy with the best life he can possibly have. This little boy is there absolute world and its inspiring to see.
Prada Willi Syndrome is a rare genetic condition that affects 1 in 15,000 babies. One aspect of the condition is poor muscle tone, which will affect his talking, crawling and walking. He has to be fed through a tube for now and as he grows older he may never feel fullness and feel the need to over eat. But through the correct treatment and therapy all these aspects can be improved massively.
The money raised will go towards Jaxsons treatment and therapy. I know they've looked into an intense therapy centre in America "the napa centre" which costs £6000 for each 3 week block. They've got a long road ahead, so any funding and donations will make that road a little less bumpy.
If me running a marathon can help towards that then it'll be like a walk in the park. If you do decide to donate, then thank you very much. I really appreciate it and it will mean everything to them ❤❤
I'm aiming to raise as much money as I can for Jaxson. To help him on his journey and to help Zach and Louise give him the best life possible.
When I first heard about Jaxson being diagnosed with Prader Willi Syndrome, it hit me hard, I couldn't believe it. Being a parent myself, and knowing Zach and Louise personally. I just couldn't begin to imagine how they felt and what they were going through. They're two of the nicest selfless individuals around, and I know all they want out of life now, is to be able to provide there boy with the best life he can possibly have. This little boy is there absolute world and its inspiring to see.
Prada Willi Syndrome is a rare genetic condition that affects 1 in 15,000 babies. One aspect of the condition is poor muscle tone, which will affect his talking, crawling and walking. He has to be fed through a tube for now and as he grows older he may never feel fullness and feel the need to over eat. But through the correct treatment and therapy all these aspects can be improved massively.
The money raised will go towards Jaxsons treatment and therapy. I know they've looked into an intense therapy centre in America "the napa centre" which costs £6000 for each 3 week block. They've got a long road ahead, so any funding and donations will make that road a little less bumpy.
If me running a marathon can help towards that then it'll be like a walk in the park. If you do decide to donate, then thank you very much. I really appreciate it and it will mean everything to them ❤❤
Organizer
Daz Smith
Organizer
England
