Beschermde donatie
Trials and unexpected challenges are part of life, but there are some challenges we are never prepared for ... like ALS.
In May 2019, our dear friend, Rebecca Hill Leising, shared that she had been diagnosed with amyotrophic lateral sclerosis (ALS). Our hearts dropped. In the 30+ years of knowing Rebecca, we have never seen her in a life challenge she couldn’t persevere, problem-solve, or work harder to overcome. She has always been fiercely independent and active. She is now in a position where she must depend on others to face the hardest fight of her life.
Many have heard of Lou Gehrig, “The Iron Horse.” Full of grace and humility, Lou Gehrig had to quit the sport he loved, accept the reality of “no cure,” and become dependent on loved ones to be his caregivers when he was diagnosed with ALS. The baseball player brought awareness to this cruel debilitating disease.
Rebecca is wheelchair dependent for independent mobility and had to stop employment as a landscape architect on January 31, 2020. On top of dealing with this devastating diagnosis, the loss of income will burden her family beyond their resources. The average out of pocket costs can exceed $150,000 per year for individuals with ALS and their families. The monthly cost of caregivers can be from $2,000 - $3,600 per month.
Currently, Rebecca’s loving husband, Matt, is working full time, physically caring for their two young sons, and is Rebecca’s primary caregiver. Matt’s love for Rebecca is evident to everyone who knows them, but ALS physically and emotionally impacts the family and loved ones of those who are diagnosed. Rebecca and Matt both know that her progression has brought them to the point of needing a caregiver during the day. She can not be left alone, however, medical insurance does not cover the cost for in-home health care for “non-medical” needs such as getting food or help to/from/in the bathroom.
Most people with ALS die within 2-5 years of receiving this diagnosis. However, progression of ALS varies with individuals, so preparing for the future can be difficult for EVERYONE. Easing some of the financial costs can help increase the quality of life for the WHOLE family during the upcoming difficulties with ALS.
In 1939, Lou Gehrig delivered “one of the most moving and memorable speeches in American culture” and ended it this way: “I close in saying that I may have had a tough break, but I have an awful lot to live for.” Rebecca has an awful lot to live for; she is a strong fighter and refuses to give in. She is most concerned about her 7 and 11 year old sons and her husband, Matt. Rebecca, her friends, and family continue to research ways to slow or reverse symptoms and extend the quality of life with ALS.
We are asking for your help to support Rebecca, Matt and their sons. What is being asked isn’t close to the anticipated costs, but any support will help. The support will be used for the following:
- Caregiver expenses
- Out pocket medical costs
- Alternative therapies & treatments
Please consider contributing any amount to help ease some of the financial burden to the Leisings and inspire hope for our friend Rebecca.
Prayers and any assistance would be greatly appreciated.
If you would, please share with your circle of friends and family.
Thank you!
In May 2019, our dear friend, Rebecca Hill Leising, shared that she had been diagnosed with amyotrophic lateral sclerosis (ALS). Our hearts dropped. In the 30+ years of knowing Rebecca, we have never seen her in a life challenge she couldn’t persevere, problem-solve, or work harder to overcome. She has always been fiercely independent and active. She is now in a position where she must depend on others to face the hardest fight of her life.
Many have heard of Lou Gehrig, “The Iron Horse.” Full of grace and humility, Lou Gehrig had to quit the sport he loved, accept the reality of “no cure,” and become dependent on loved ones to be his caregivers when he was diagnosed with ALS. The baseball player brought awareness to this cruel debilitating disease.
Rebecca is wheelchair dependent for independent mobility and had to stop employment as a landscape architect on January 31, 2020. On top of dealing with this devastating diagnosis, the loss of income will burden her family beyond their resources. The average out of pocket costs can exceed $150,000 per year for individuals with ALS and their families. The monthly cost of caregivers can be from $2,000 - $3,600 per month.
Currently, Rebecca’s loving husband, Matt, is working full time, physically caring for their two young sons, and is Rebecca’s primary caregiver. Matt’s love for Rebecca is evident to everyone who knows them, but ALS physically and emotionally impacts the family and loved ones of those who are diagnosed. Rebecca and Matt both know that her progression has brought them to the point of needing a caregiver during the day. She can not be left alone, however, medical insurance does not cover the cost for in-home health care for “non-medical” needs such as getting food or help to/from/in the bathroom.
Most people with ALS die within 2-5 years of receiving this diagnosis. However, progression of ALS varies with individuals, so preparing for the future can be difficult for EVERYONE. Easing some of the financial costs can help increase the quality of life for the WHOLE family during the upcoming difficulties with ALS.
In 1939, Lou Gehrig delivered “one of the most moving and memorable speeches in American culture” and ended it this way: “I close in saying that I may have had a tough break, but I have an awful lot to live for.” Rebecca has an awful lot to live for; she is a strong fighter and refuses to give in. She is most concerned about her 7 and 11 year old sons and her husband, Matt. Rebecca, her friends, and family continue to research ways to slow or reverse symptoms and extend the quality of life with ALS.
We are asking for your help to support Rebecca, Matt and their sons. What is being asked isn’t close to the anticipated costs, but any support will help. The support will be used for the following:
- Caregiver expenses
- Out pocket medical costs
- Alternative therapies & treatments
Please consider contributing any amount to help ease some of the financial burden to the Leisings and inspire hope for our friend Rebecca.
Prayers and any assistance would be greatly appreciated.
If you would, please share with your circle of friends and family.
Thank you!
Organisator en begunstigde
Melissa Clapp
Organisator
Topanga, CA
Matthew Leising
Begunstigde