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I'm looking for support for my health

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My name is Sodgerel ("Sodo") Gankhuyag. I'm 34 years old. I came to the states when I was 18. I was always healthy until 2016, when everything changed and I was diagnosed with kidney failure. I was only 28 years old. I had unusual symptoms and couldn't get out of bed. I never thought I would be told that I had a chronic disease that caused me to lose 90% of my kidney function. I have now been on dialysis for almost 6 years. I have had extremely high blood pressure, swelling, low blood counts, and didn't produce urine. I was also put on IV iron almost every month and continue to have to inject EPO every week. When I started dialysis, it would take 9 hours every day. After being on it so long, it doesn't work as well and has increased to 12 hours a day. I have also since found out that I have a blood clot in the left side of my brain. None of my doctors have been able to explain why I was diagnosed with Chronic Kidney Disease (CKD).
I have learned to manage my CKD with medications, restricted diets, regular hospital visits, and lifestyle changes. I have tried to live my life as fully as possible. I have worked hard, exercised frequently as other healthy people do and I never complained.
I am on so many medications now that I can't even count and maybe because of that or the length of time I've been on dialysis, it has now started affecting my pancreas, thyroid, heart, etc. My skin is darker than before. It is not a good feeling as a woman. I've been hospitalized more recently because of internal bleeding from my left kidney and subsequently needed to have surgery. It was an absolute nightmare between the stabbing pain in my lower back and passing out from all of it. The pain was unbearable. I couldn't eat or keep anything down. I lost so much weight in just 10 days. I had no energy to walk or talk. It was the most miserable time of my life. I have since had Covid and now I have also found out that I need more surgery on my left kidney due to concerns for a cancerous spot. So, I just got a another surgery to took my left kidney out two weeks ago and I'm still in pain from the surgery couldn't work or do anything in this situation.
At this point, my doctors want me to rest and get stronger before my next surgery, but I am unable to because I have so many bills to pay and am not from a wealthy family. It's hard to find a job that would also allow me to be taking so much time off for my hospital visits, so I've been driving Uber to help pay some bills. But I get really tired after a couple of hours. It has been challenging for me lately. I'm asking for your help. After this transplant, I will be unable to work for at least a year, in addition to taking costly pills for the rest of my life. Being an immigrant in the United States, it's hard for me to get full coverage for all the medications and the surgery. I would be forever grateful if you would help me raise these funds for me. Thank you for taking the time to read my story.  


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    Sodgerel Gankhuyag
    Organisator
    Arlington Heights, IL

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