Kevin Forster, my son has ALS . He requires constant care. He is unable to move,he is fed through gastrostomy tube, He has a tracheostomy and is on a full time ventilator. He recently developed a deep wound on his back, which is going to require surgery. We are asking for help to pay for his care which is not totally covered by Medi Cal. Also, there have been gaps in the nursing staff that have required us to hire additional caregivers to be with him.
He wants to be at home during this time. He still has enough spirit and he likes to attend sporting events and concerts. One of his latest goals is to attend the Allstar Game in July, He has tickets but would need to go via ambulance on a stretcher because of the wound on his back. He just loves life and it is so painful to see him suffer like this.