Cody Fights Rare Disease

Today (2016)

My name is Cody Cohen. I am coming public with my story.

2 years ago my life turned into a nightmare almost losing literally everything.. My life..  

2 years ago I was stricken with a brutal rare autoimmune disease, Granulomatosis with polyangiitis ( Wegeners Disease). My blood vessels became inflamed throughout my body and cut off the blood flow to my organs leaving dead tissue in my lungs, kidneys and in rare cases like mine, causing painful excruciating ulcers on my skin! Chunks of flesh were falling off my face and chest.  Slowly as the disease progressed my organs began to fail. I have partial hearing loss due to the inflammation that left me with severe scar tissue in my ears. I went into pre-renal failure and could not breathe due to nodules that had taken over my lungs at that time.
04/2015
03/2015

03/2015

 In the last 2 years I have been fighting to stay alive. But it's come to a cross roads for us now a sit is affecting my health and my chance to survive.

We recently lost our good medical insurance that covered my all specialists that treat my rare disease. Now half her paycheck goes to a new medical insurance that doesn't cover most of my doctors, and specialists who treat my disease at Johns Hopkins and New York City. I am completely and utterly stressed over this.

Stress is known to set off my disease and I fear for my life everyday for it can set off at any given moment!!  I had 6 surgeries so far and am in need of many more to reconstruct my face, try to regain my hearing and fix the collapse in my nose so I can breathe normally.
05/2014
My medical bills are suffocating my mom and my family. I have had to take two medical leaves so far. My dream is to finish  college and work for a talk show such as The Tonight Show. I just want and need normalcy in our lives.

My mom has done and will do anything to help me. I will not let my disease kill me or my mom which is why I decided to come to all of you. Every donation will help receive the medical treatment I need to stay to reconstruct my face, pay for my medications that are not covered.


I am scarred for life literally but  my faith and hope will never be scarred.  As I continue to heal and I am finally in remission I am strong enough to finally spread awarness for this disease and share my story.

I truly have faith in humanity and hope to one day look in the mirror and call this.. The past.. As I will one day fulfill my dream, get my health 100% back,  graduate college and pay everyones generosity forward.