Our battle against Chiari
Donation protected
Hey everyone! My name is Chris and I have a beautiful family of four.
My fiancé of seven years, Cassandra Stewart, has been battling a condition called Chiari Malformation since April 15th 2015, when she got her diagnosis. She suffers from seizures and intense migraines that are nearly debilitating. Since her diagnosis, she hasn’t been able to work and I have been the soul provider for our family, working full time and now also going to school full time to get my degree in business, accounting and auto tech.
On October 12th, we saw her surgeon for one last consultation and found out the surgery to hopefully alleviate her symptoms and give her a better quality of life where she can finally do all things that she wants without the worries or her symptoms stopping her will be on November 5th 2020.
We are looking at myself being out of work for anywhere between 2 weeks to a month. So we don't have any income coming in for the duration of that time. That also doesn’t account for all of the time I’ll need to take off to take her to appointments and to make sure the kids get to school on time.
Cassy is 24 now and has been living with this condition for some time. It would be absolutely wonderful if she could recover at home with little to no stress! She’s so strong and is ready to fight this no matter what, for her kids, friends and family that all care about her.
Any amount of donation would help! Whether it be a dollar or ten, it would go to a good cause. To feed my family, help keep the bills up to date and to make sure the vehicles stay running so she can get to her appointments and hopefully have a speedy recovery.
What is chiari malformation exactly? Heres the info we know.
Chiari malformation (kee-AH-ree mal-for-MAY-shun) is a condition in which brain tissue extends into your spinal canal. It occurs when part of your skull is abnormally small or misshapen, pressing on your brain and forcing it downward.
In Chiari malformation type I, signs and symptoms usually appear during late childhood or adulthood.
Headaches, often severe, are the classic symptom of Chiari malformation. They generally occur after sudden coughing, sneezing or straining. People with Chiari malformation type I can also experience:
Neck pain
Unsteady gait (problems with balance)
Poor hand coordination (fine motor skills)
Numbness and tingling of the hands and feet
Dizziness
Difficulty swallowing, sometimes accompanied by gagging, choking and vomiting
Speech problems, such as hoarseness
Less often, people with Chiari malformation may experience:
Ringing or buzzing in the ears (tinnitus)
Weakness
Slow heart rhythm
Curvature of the spine (scoliosis) related to spinal cord impairment
Abnormal breathing, such as central sleep apnea, which is when a person stops breathing during sleep)
My fiancé of seven years, Cassandra Stewart, has been battling a condition called Chiari Malformation since April 15th 2015, when she got her diagnosis. She suffers from seizures and intense migraines that are nearly debilitating. Since her diagnosis, she hasn’t been able to work and I have been the soul provider for our family, working full time and now also going to school full time to get my degree in business, accounting and auto tech.
On October 12th, we saw her surgeon for one last consultation and found out the surgery to hopefully alleviate her symptoms and give her a better quality of life where she can finally do all things that she wants without the worries or her symptoms stopping her will be on November 5th 2020.
We are looking at myself being out of work for anywhere between 2 weeks to a month. So we don't have any income coming in for the duration of that time. That also doesn’t account for all of the time I’ll need to take off to take her to appointments and to make sure the kids get to school on time.
Cassy is 24 now and has been living with this condition for some time. It would be absolutely wonderful if she could recover at home with little to no stress! She’s so strong and is ready to fight this no matter what, for her kids, friends and family that all care about her.
Any amount of donation would help! Whether it be a dollar or ten, it would go to a good cause. To feed my family, help keep the bills up to date and to make sure the vehicles stay running so she can get to her appointments and hopefully have a speedy recovery.
What is chiari malformation exactly? Heres the info we know.
Chiari malformation (kee-AH-ree mal-for-MAY-shun) is a condition in which brain tissue extends into your spinal canal. It occurs when part of your skull is abnormally small or misshapen, pressing on your brain and forcing it downward.
In Chiari malformation type I, signs and symptoms usually appear during late childhood or adulthood.
Headaches, often severe, are the classic symptom of Chiari malformation. They generally occur after sudden coughing, sneezing or straining. People with Chiari malformation type I can also experience:
Neck pain
Unsteady gait (problems with balance)
Poor hand coordination (fine motor skills)
Numbness and tingling of the hands and feet
Dizziness
Difficulty swallowing, sometimes accompanied by gagging, choking and vomiting
Speech problems, such as hoarseness
Less often, people with Chiari malformation may experience:
Ringing or buzzing in the ears (tinnitus)
Weakness
Slow heart rhythm
Curvature of the spine (scoliosis) related to spinal cord impairment
Abnormal breathing, such as central sleep apnea, which is when a person stops breathing during sleep)
Organizer
Chris Kruse
Organizer
Chappell, NE
