Naas GAA 700km-May 9th in aid of Roar For Ruairi

Naas GAA players playing their part in raising funds for critical treatment for a young boy. Ruairi's Story: On the 31st October 2019 Ruth & Martin received the devastating news that their beautiful son had been diagnosed with a very rare degenerative and life-limiting neurological condition. This very rare and fatal condition affects 1:20,000 people globally and the disease has been rapid and relentless in its progress over the past 3-4 months. It has already robbed Ruairi of his sight, his ability to speak and much of his cognitive ability. Medical experts in Ireland and abroad have been consulted but sadly there is no medical treatment for this terrible disease. Unfortunately for Ruairi and the McDonnell family, this downward spiral will eventually lead to hearing loss, seizures and loss of muscle control over the next few years.   Prior to his diagnosis Ruairi had been attending school in Clane and was enjoying all the same activities like other boys his age. He loved GAA, especially hurling, riding his bike and playing with his two brothers and many friends. He also loved being outside in the garden, climbing trees and searching for creepy crawlies.   Ruairi can no longer enjoy these activities in the same way he used to, however he remains a very loving and gentle child with a huge zest for life and sense of adventure. However, he now requires 24-hour personal care which is provided by his parents who at the same time are trying to maintain a normal happy home for Ruairi and his brothers. As the disease progresses Ruairi will require full time home nursing and the family home requires significant adaptations to meet his care needs. The care supports provided by the state in this situation are extremely limited.     According to Ruth “Ruairi loved all his superheroes but his absolute favourite is The Hulk” and for this reason we are naming our fundraising appeal, “Roar for Ruairi”. This appeal is to give financial assistance to Martin and Ruth with the ongoing home care costs for Ruairi now and into the future. We are greatly appreciative of all donations received.