This is our beautiful daughter Chloe Elizabeth.
She was born on January 8th 2013 in Petoske Michigan after a C-section due to uncertain fetal status.
Immediately after she was born doctors were very concerned. She was having seizure like activity, couldn't swallow or blink, and had very little muscle tone. Shortly after noticing these symptoms they called Devos children's hospital located in Grand Rapids and they had a helicopter flown to get her.
Chloe is now reaching four months old and has spent all but two weeks of her life in intensive care. She spent 67 days in Devos's NICU, and while there was given a surgically implanted feeding tube. She was released without a diagnosis and sent home with suctioning equipment, an apnea monitor and pulse ox, in home oxygen, and the equipment to feed her via her G-tube.
She was discharged and spent two weeks at home with us until her apnea episodes got worse. She was admitted to Royal Oak Beaumont and was given a diagnosis of Pierre Robin Sequence. This is a condition in which the bottom jaw is significantly smaller than the upper jaw resulting in possible airway obstructions. Because her jaw was so small and her tongue was regular size her tongue was blocking her airway and causing apnic episodes. She had to have an operation done to extend her bottom jaw called mandibular distraction. Screws were placed in her jaw and turned every day for 7 days for her jaw to fit her face and correct the airway obstruction.
This has been a very hard time emotionally for Jeff and me as well as financially too since Jeff lost his job in the process.
This page is dedicated to support Chloe in every way shape and form.
Thank you all for your prayers and support.
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