Conky and Cod Head are Rallying for Rupert - Please Donate

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  • Profilfoto von Ciaran Considine
  • Profilfoto von Ciaran Considine
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Conky and Cod Head are Rallying for Rupert - Please Donate

Conky and Cod Head are Rallying for Rupert - Please Donate

0% complete

2442 £ gesammelt, Spendenziel: 2 Tsd. £

69 Spenden
Check out some of the Stars endorsing last years event... We are hoping to make it much bigger this year too....

Intrepid Pals, Ciaran Considine and Andy Kneeshaw are pushing themselves to the limit to raise finds for this wonderful charity. We have volunteered to be part of a group of over 100 volunteers raising money in aid of RALLY ROUND RUPERT, a charity set up to relieve the need and protect the health of children and their families affected by SMA throughout England & Wales, and every donation will help.

In June 2024, we will attempt to walk the entire length (over 100 miles) of the Cotswold Way, to help raise funds in support of clinical research. To increase awareness of the condition and to highlight the inaccessibility of UK rural walkways, the team also aim to transport Gary Edgecombe, an individual who has SMA Type 3, a variant of the condition that onsets later in life. Gary will be transported in a custom-built wheelchair, and where necessary, lifted over walls and parts of the route that just don’t allow those with restricted mobility to access – a truly symbolic journey!

Needless to say we have spent much of our spare time building blisters and stretching things we didn't know could be stretched.

Thank you in advance for your contribution to this cause that has impacted us both personally and emotionally in many ways. Any contribution, no matter how small or large, will go a long way to helping us achieve our target.
All contributions received through our Go Fund Me page will go directly to the charity.

This is truly one of the hardest challenges to we have taken up to date... !

More information about RALLY ROUND RUPERT:
To relieve the need and protect the health of children and their families affected by Spinal Muscular Atrophy (SMA) throughout England & Wales for the public benefit by:
a. Working to improve the understanding and knowledge of Spinal Muscular Atrophy (SMA) among the public.
b. Providing financial support to further advance clinical research into Spinal Muscular Atrophy (SMA).

Please visit the following links for more information

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Co-organizers2

Profilfoto von Ciaran Considine
Ciaran Considine
Organisator:in
England
Research SMA
Spendenbegünstigte:r
Profilfoto von Andy Kneeshaw
Andy Kneeshaw
Mitorganisator:in

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