please help get zowie treatment
Donation protected
When I first met zowie in byron Bay in the summer of 2009 she was this bubbly, shimmering light full of energy you couldn't help but notice her whenever she would walk into a room.
Then in 2012 during her pregnancy of her third child zowie noticed that her right leg had begun to weaken. When she would stand on both of her legs would shake making it difficult for her to walk.then the never ending head ache started. Also the aches and pains in her bones left her feeling as thou she had been run over.
After multiple trips to the emergency department they would send her home with pain killers and made it out as thou it was all in her head.After weeks of being turned away from the ED her legs started to tingle resulting in her losing complete sensation in both legs leaving her paralyzed hip down.
Once again to the ED she was finally admitted.After spending four months in hospital she lost the use of her bladder, legs and very few test were being conducted.
Finally they performed a spinal tap and found an unknown bacteria in the fluid of the spine however they never investigated what the bacteria was or did any further testing and was send home saying it was gillian bar syndrome ( which means they had no idea nor were interested in investigating further).
At this point zowie was 24 weeks pregnant and fearful her child may contract this bacteria or may not survive the rest of the pregnancy.
At the time zowie was admitted in hospital with so called gillian bar syndrome (which it wasnt) we watched a story on today tonight on a young girl the same age as zowie with exactly the same symptoms and she was suffering from lymes disease. Zowies mother begged the hospital to start testing for lymes but they refuse saying that lymes disease doesn't egsist in Australia.
Well it does her mum plus 100 of people around Australia are living proof.
Over the years zowie has lived with illness and has found ways to have some quality of life diet, , physio, osteo, and a whole lot of pain relief.
However recently shortly after a miscarriage the more severe the symptoms began again and quickly.
The regular ED visits began again
Presenting with chronic fatigue, bone , cramps and muscular pain.On going rash to her palms and chest, nausea, headaches, dizzness, loss of appetite, hip, neck and back pain but worst of all her right leg is weaking again.The combination of these symptoms makes it impossible for her to carry out the simplest of tasks such as getting out of bed on her own as she is now wobbly on her legs, feeding, cleaning, dressing and bathing her self is impossible.
She has become dependant on me as her full time carer which I do to the best of my abilities being a low
Income earner and a full time student. I love zowie with all my heart and we are engaged to be married and couldn't be more committed to one another.
Unfortunately I have become frustrated and losing trust in the health department in our are due to the way they have treated zowie telling her it is all in her head and refused to treat her.luckyly we have found a specialist in the area that specialises in lymes but his appointments cost alot due to he is a private specialist.
We are financialy struggling from the cost of zowies vitamins and private specialist who will find the answers as a result we are soon to be with out a car which gets zowie
to her appointments to and we know that usually treatment for lymes disease is treated overseas. Im asking please if you can help please make a donation. I want zowie to have her life, energy, health back.
Some day zowie says she doesn't even want to get out of bed, she doesn't want to live anymore.
Please help zowie get the answers , and treatment she deserves.
Please help her give her the one wish she wants and thats to walk
down the aisle on our wedding day
unassisted
Then in 2012 during her pregnancy of her third child zowie noticed that her right leg had begun to weaken. When she would stand on both of her legs would shake making it difficult for her to walk.then the never ending head ache started. Also the aches and pains in her bones left her feeling as thou she had been run over.
After multiple trips to the emergency department they would send her home with pain killers and made it out as thou it was all in her head.After weeks of being turned away from the ED her legs started to tingle resulting in her losing complete sensation in both legs leaving her paralyzed hip down.
Once again to the ED she was finally admitted.After spending four months in hospital she lost the use of her bladder, legs and very few test were being conducted.
Finally they performed a spinal tap and found an unknown bacteria in the fluid of the spine however they never investigated what the bacteria was or did any further testing and was send home saying it was gillian bar syndrome ( which means they had no idea nor were interested in investigating further).
At this point zowie was 24 weeks pregnant and fearful her child may contract this bacteria or may not survive the rest of the pregnancy.
At the time zowie was admitted in hospital with so called gillian bar syndrome (which it wasnt) we watched a story on today tonight on a young girl the same age as zowie with exactly the same symptoms and she was suffering from lymes disease. Zowies mother begged the hospital to start testing for lymes but they refuse saying that lymes disease doesn't egsist in Australia.
Well it does her mum plus 100 of people around Australia are living proof.
Over the years zowie has lived with illness and has found ways to have some quality of life diet, , physio, osteo, and a whole lot of pain relief.
However recently shortly after a miscarriage the more severe the symptoms began again and quickly.
The regular ED visits began again
Presenting with chronic fatigue, bone , cramps and muscular pain.On going rash to her palms and chest, nausea, headaches, dizzness, loss of appetite, hip, neck and back pain but worst of all her right leg is weaking again.The combination of these symptoms makes it impossible for her to carry out the simplest of tasks such as getting out of bed on her own as she is now wobbly on her legs, feeding, cleaning, dressing and bathing her self is impossible.
She has become dependant on me as her full time carer which I do to the best of my abilities being a low
Income earner and a full time student. I love zowie with all my heart and we are engaged to be married and couldn't be more committed to one another.
Unfortunately I have become frustrated and losing trust in the health department in our are due to the way they have treated zowie telling her it is all in her head and refused to treat her.luckyly we have found a specialist in the area that specialises in lymes but his appointments cost alot due to he is a private specialist.
We are financialy struggling from the cost of zowies vitamins and private specialist who will find the answers as a result we are soon to be with out a car which gets zowie
to her appointments to and we know that usually treatment for lymes disease is treated overseas. Im asking please if you can help please make a donation. I want zowie to have her life, energy, health back.
Some day zowie says she doesn't even want to get out of bed, she doesn't want to live anymore.
Please help zowie get the answers , and treatment she deserves.
Please help her give her the one wish she wants and thats to walk
down the aisle on our wedding day
unassisted
Organizer
Zowie Tydeman
Organizer
Booyong NSW
