Charlotte's Village
Spende geschützt
Meet Charlotte. She is a happy, fun-loving, two year old little girl and daughter of a local Webster, NH family. Charlotte is living with a rare genetic disease called cystinosis.
It is so rare that less than 2,000 individuals have it world-wide. It causes Charlotte's amino acids to crystallize within tissues causing dangerous complications in her organs and central nervous system. There is no cure yet, but modern medicine can improve and extend the life expectancy of individuals with cystinosis.
Current treatment requires frequent visits to Boston Children's Hospital for blood testing, food & medicine to be given via her GI feeding "button", special eye drops and thousands of dollars in prescription medicine and co-pays.
After Charlotte's birth & diagnosis, Mom did not return to work and instead became Charlotte's caretaker 24/7.
Taking the best care possible of Charlotte has been Mom & Dad's priority physically & financially (as it should be) and home "wish projects" that had to be placed on the back burner have become "must get done projects" such as a failing roof, and substantial unfinished repairs.
Working with a local contractor with a heart of gold we made a promise this family that we would repair and remodel their home with zero cost to them.
It takes a village and that is why we are sharing this with you. One person can't make this happen but many of us working together can. One family can't carry this burden alone but with a village supporting them, they can.
Please consider donating and sharing. Any funds raised in excess of building materials will be given directly to the family to help cover Medical expenses.
Thank you from the bottom of our hearts!
It is so rare that less than 2,000 individuals have it world-wide. It causes Charlotte's amino acids to crystallize within tissues causing dangerous complications in her organs and central nervous system. There is no cure yet, but modern medicine can improve and extend the life expectancy of individuals with cystinosis.
Current treatment requires frequent visits to Boston Children's Hospital for blood testing, food & medicine to be given via her GI feeding "button", special eye drops and thousands of dollars in prescription medicine and co-pays.
After Charlotte's birth & diagnosis, Mom did not return to work and instead became Charlotte's caretaker 24/7.
Taking the best care possible of Charlotte has been Mom & Dad's priority physically & financially (as it should be) and home "wish projects" that had to be placed on the back burner have become "must get done projects" such as a failing roof, and substantial unfinished repairs.
Working with a local contractor with a heart of gold we made a promise this family that we would repair and remodel their home with zero cost to them.
It takes a village and that is why we are sharing this with you. One person can't make this happen but many of us working together can. One family can't carry this burden alone but with a village supporting them, they can.
Please consider donating and sharing. Any funds raised in excess of building materials will be given directly to the family to help cover Medical expenses.
Thank you from the bottom of our hearts!
Organisator und Spendenbegünstigter
Bear McKim
Organisator
Belmont, NH
Charles Wood
Spendenbegünstigte
