Baby Sophie Liane

April 8, 2017 11:40 pm

Our little Sophie arrived, 6lbs 14.5oz & 19in long. Unfortunately, during the labor process she was deprived of oxygen for a period of time or HIE(http://www.birthinjuryguide.org/birth-injury/types/hypoxic-ischemic-encephalopathy-hie/).
Before we had any idea what was happening to Sophie, she was taken from us and rushed to the NICU at Children's Hospital.
She was immediately put on life support and started a process called 'therapeutic hypothermia' (http://www.birthinjuryguide.org/birth-injury/treatment/neonatal-therapeutic-hypothermia/). Basically, cooling her body temperture enough to temporarily stop her organ & brain function to prevent any further damage.  This process continued for 72 hours. Sophie was then warmed back up to normal body temperature to let her bodily functions turn back on. This is the time we started seeing problems. She started suffering from seizures according to what the neurologists were seeing on her EEG monitoring. At that point, she was put on a regular dosage of a seizure medication(PHENObarbital). The seizures continued and she was given a second medication which then controlled her seizures for the time being. The unknown was agonizing as we awaited the day of her MRI(Sunday April, 16th). We came to realize that she had a significant amount of brain damage which was scattered globally. The doctors say that they believe Sophie will never be able to walk, talk, eat, or even be aware of her surroundings. She was diagnosed with 'spastic cerebral palsy'(https://www.cerebralpalsyguide.com/cerebral-palsy/types/spastic/).
We were heartbroken and left with some tremendous decisions to make.  As the days went on, we proceeded by slowly removing Sophie's life supports, not knowing what could potentially happen.  As of now,  most of her support has been removed. Her EEG wires were taken off due to her seizures being controlled. Her breathing tube came next because she was breathing over the ventilator. She had some difficulty once the tube was removed and was placed on a less powerful vent so she receives support through her nose. She is off IV nutrition and is on a continuous breast milk feed which she is getting through her feeding tube. Presently, that leads us to her next step; removing her feeding tube... *Her story will continue and will be updated daily*

                             *****************************

*Believe in a miracle & it shall happen*

*We created this page more for family & friends to stay updated and show love & support to baby Sophie. We are not expecting people to donate but any donations will be greatly appreciated and will go toward the well-being of Sophie & our family. *