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Baby Nolen Fights CDH

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This young couple is expecting their second child in June  Unfortunately at 20 weeks they found out baby has CDH(Congenital Diaphragmatic Hernia).  

 The diaphragm forms when a fetus is at 8 weeks’ gestation. When it does not form completely, a defect, called a congenital diaphragmatic hernia (CDH), is created. This is a hole in the muscle between the chest and the abdomen. The hole allows the contents of the abdomen (stomach, intestine, liver, spleen, and kidneys) to go up into the fetal chest. The herniation of these abdominal organs into the chest occupies that space and prevents the lungs from growing to normal size. The growth of both lungs can be affected. The result of this is called pulmonary hypoplasia.

Babies with severe CDH and very small lungs can have difficult challenges after birth, and some will not survive. These babies require very skilled intensive care to stay alive—things like high-frequency or oscillatory ventilation, inhaled nitric oxide and, in some cases, extracorporeal membrane oxygenation (ECMO). ECMO provides temporary support for lung failure by circulating the baby’s blood through a heart-lung type machine. It can be life-saving, but can be used for only limited time. This is all information given by doctors and this website, (https://fetus.ucsf.edu/cdh) which does give more information if you are interested.

After the baby is born they will be in NICU for several weeks and will have surgery to repair the hernia.
Meanwhile Haley must stay by mayo clinic until baby is born because of the severity of baby's health.

On April 12 Haley and the baby underwent surgery to place a ballon in the baby's trachea to help the lungs grow. So far both are doing well.
Our goal is to help raise money to ease the burden of increasing medical expenses as Haley and the baby continue to go through multiple surgeries and hospital visits both before and after the baby's delivery.

All contributions will go towards medical bills as well as expenses for travel and housing in Rochester, MN. 

We appreciate any and all donations to help this beautiful young couple and their ever-growing family.
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Donations 

  • Anonymous
    • $50 
    • 7 yrs
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Organizer and beneficiary

Pam Nolen
Organizer
Sioux City, IA
Tyler Nolen
Beneficiary

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