Alexandra's campaign for pulmonary fibrosis trust
I am taking myself completely outside of my comfort zone by jumping out of a plane at 10,000ft on 20 July 2019!
I am doing this in memory of my Mum, Gail Starr Rastin (who sadly passed away in February this year from Idiopathic Pulmonary Fibrosis (IPF)) and in aid of the Pulmonary Fibrosis Trust who were a real support to us both.
IPF is a chronic lung disease which scars the lungs and reduces the sufferer's ability to breath when doing everyday activities such as washing, dressing, walking etc. The term 'idiopathic' means that the cause is not known and there is no cure for the condition. Current statistics show that 6,000 people in the UK are diagnosed with this condition each year.
My Mum was diagnosed in June last year. Before her diagnosis my Mum was extremely active (she never drove) with a real zest for life.
Over Christmas 2017 she became poorly with what her GP thought was a chest infection. Over the coming months she had more and more difficulty breathing and consequently she had less and less energy. By the time she received her diagnosis she needed oxygen when active and also when resting. When active her portable oxygen canisters would only last one hour which severely restricted her ability to leave the house.
I contacted the Pulmonary Fibrosis Trust shortly after my Mum's diagnosis. As well as emotional and practical support, the Trust also provided her with a mobility scooter and a battery for her oxygen compressor which meant that she could leave the house for 6 hours. This gave my Mum the opportunity to regain her independence, freedom and most importantly some quality of life.
The kindness and the generosity of the Trust is truly astounding and I am so thankful for what they did for my Mum. They are only a small charity and every donation will make such a big difference. Please dig deep! This cause means so much to me and I want to thank you in advance for your contribution and support.
More information about Pulmonary Fibrosis Trust: The aim of the Pulmonary Fibrosis Trust is to provide personal support to people affected by Pulmonary Fibrosis, a very debilitating and life-limiting illness. We offer practical, emotional and financial support where there is a need. We also raise awareness of the illness and in particular the challenges people face on a daily basis.
I am doing this in memory of my Mum, Gail Starr Rastin (who sadly passed away in February this year from Idiopathic Pulmonary Fibrosis (IPF)) and in aid of the Pulmonary Fibrosis Trust who were a real support to us both.
IPF is a chronic lung disease which scars the lungs and reduces the sufferer's ability to breath when doing everyday activities such as washing, dressing, walking etc. The term 'idiopathic' means that the cause is not known and there is no cure for the condition. Current statistics show that 6,000 people in the UK are diagnosed with this condition each year.
My Mum was diagnosed in June last year. Before her diagnosis my Mum was extremely active (she never drove) with a real zest for life.
Over Christmas 2017 she became poorly with what her GP thought was a chest infection. Over the coming months she had more and more difficulty breathing and consequently she had less and less energy. By the time she received her diagnosis she needed oxygen when active and also when resting. When active her portable oxygen canisters would only last one hour which severely restricted her ability to leave the house.
I contacted the Pulmonary Fibrosis Trust shortly after my Mum's diagnosis. As well as emotional and practical support, the Trust also provided her with a mobility scooter and a battery for her oxygen compressor which meant that she could leave the house for 6 hours. This gave my Mum the opportunity to regain her independence, freedom and most importantly some quality of life.
The kindness and the generosity of the Trust is truly astounding and I am so thankful for what they did for my Mum. They are only a small charity and every donation will make such a big difference. Please dig deep! This cause means so much to me and I want to thank you in advance for your contribution and support.
More information about Pulmonary Fibrosis Trust: The aim of the Pulmonary Fibrosis Trust is to provide personal support to people affected by Pulmonary Fibrosis, a very debilitating and life-limiting illness. We offer practical, emotional and financial support where there is a need. We also raise awareness of the illness and in particular the challenges people face on a daily basis.
Organizer
Alex Rastin
Organizer
England
pulmonary fibrosis trust
Registered nonprofit
Donations eligible for Gift Aid.
