Epilepsy Brain Surgery Fund
It took many 2.5 years and approximately 6 neurologists for me to find someone that knew what to do to help me. I am now at a jucture in my life where I find myself needing help which is a place I never thought I'd find myself in. I'm great lending a helping hand, encouraging others, but asking for a handout is not really my thing. The closer I get to brain surgery the more I realize this isn't something I can do on my own. It will be a God thing if I am able to afford all of this.
Starting the end of January I will have what's called a stereo EEG in order to find the source, or focus, or my seizures so they can make appropriate recommendations for further treatment. There are two surgeries involved, one to place the sensors inside my head and another to take them out. Upon looking at the results they will either decide to extract a portion of my brain if my seizures are localized to a specific area or place a pace maker for you brain to interrupt my seizures to hopefully get me back to a normal quality of life. I was in the hospital in August for what called a video EEG, similar but less intense to the stereo EEG, where it wound up costing me just under $10,000. I can't imagine how much these next 3 surgeries will cost given that a nonsurgical procedure was approximately $8500.
If this was not enough, my husband and I find ourselves wondering how we will make it through the next year as he may loose his job, which would mean I may loose health insurance. We also have to move out of our apartment by the end of January, the same day I go in for surgery to be exact. Given all the expenses of surgery, plus student loans, and other living expenses, we don't have enough money to rent another apartment. We don't regret going to Christian colleges since we wanted to work in the ministry, however, you pay for it dearly. I gladly pay my bills each month but I can't help but think all the situations in my life right now have left me in a place of unpredictability as I am not sure what will come next or how I will handle all of this. I have hope and joy in Christ through all of these things and expect that He will move in my life, possibly through your support.
I pray that if God leads you to help me in any way, through prayer, monetary support, or encouragment that He would bless you 100 fold for all of your effort, kindness, and selflessness. Thank you for reading about my story. I am happy to expand if you would like to know more. Thanks again for considering helping me as I try to get to a healthy place in my life to pursue my goals of being a mother, a top notch Christian Counselor, and a woman of God that God himself can be proud of. Last but not least, please let me know how I can pray for you!
I hope this message finds you well. I wanted to update you on my current health issues after having the first 2 of 3 brain surgeries. I had about 20 holes drilled into my skull where electrodes were anchored into my brain and hooked to about 25lbs of extra electrical equipment to trace the origin of my seizures. According to my doctor that saw me in the hospital, in lieu of my neurologist who is on maternity leave, I am a great candidate for a right temporal lobectomy. This means they would go in and remove the defective part of my brain to either reduce or cure me of my seizures. They found that my seizures are coming from my right neocortex which is above my right ear. It is within the normal area of resection which usually involves very little complications typically. They may have to remove my hippocampus due to it playing an integral role in spreading my seizures across my entire brain, however, they state this has been done many times with very little to none side-effects. If they don't remove it the result might mean that the seizures would start up in another area of my brain. A group of 15 doctors will review all the results of the many tests that I have done and come up with a treatment plan that they all agree with. I will go to the doctor on March 2nd to find out what this plan is and the process that it will entail. They predict that it will be in about 6-8 weeks. I have a new appreciation for being "fearfully and wonderfully made". I think sometimes we don't realize how incredible God is and how He is all in the details until we encounter him up close and personal. After having these two procedures done, which by the way were very painful, I am beyond thankful that God is my creator and also my great physician. Without him I know that I would not have received the positive results that I did. I am currently back at work, however, I am now having complications with an increase in my seizures. I hope to have this issue resolved soon as I see my doctor in about a week. It is exhausting having 3-4 seizures a night with very little sleep. I am so grateful for each of you who have encouraged me throughout this whole process. It brings tears to my eyes when I pray and think about all that you have done for me. I am humbled that God has brought so many people in my life to pray for me and support me that I don't even know. Thank you so much! Please know that there is not a day that goes by that I don't thank God for you. I hope one day I will be able to show the same sort of love to someone else who may be going through something similar. Take care and have a blessed day!