Nadine's Major Surgery Fund

$12,020 of $15k goal

Raised by 172 people in 14 months
Nadine Goranson  PORTLAND, OR
I hesitate to write this - I’m not comfortable asking for help. But, I find myself in a medical crisis that requires it, so here goes.  After many years of digestive issues, an unbelievable number of tests and consults, without resolution, I finally got a surprise diagnosis, after a CT scan of my abdomen.

The doctors found  I was born with my digestive organs in the wrong places - a disorder known as Intestinal Malrotation. My small intestines sit vertically on the right side of my abdomen, my appendix on the left, my colon sits vertically along my left side from my ribcage on down, and has been deemed “inert” – its muscles do not move properly.  I am also missing  parts of my digestive system. Scar tissue was stretched across and pressing down on all my digestive organs. I had an initial surgery to remove the scar tissue – with the hope of alleviating the problems.

It did not.

I now find myself unable to eat solid food without pain and abdominal distention – (at times after eating I look like a 57 year-old woman who is 6 months pregnant) – I have a severe inability to process food and digest solids.

Stated simply: Food doesn’t go down, eventually swells up my body and doesn’t come out for sometimes over a week or more. Food also causes hot flashes, passing out, and pain. Every day, my routine is to not eat all day (a small bowl of soup can feel like Thanksgiving Dinner) and then wait for dinner time – do the best I can – then sit up late into the night until 3 or 4 AM often, hours after eating a small amount, until I can comfortably lie down to try and sleep. And I continue to gain weight. Some have speculated that the reason for that is that my body is in starvation mode and not absorbing what it needs. This is every day, 24 hours a day.

I have been lucky to find an experienced surgeon in Cleveland, Ohio who can help. He is the head of the Digestive Disease Institute and Transplant Center at The Cleveland Clinic and has extensive experience with congenital disorders like mine. I have friends from other parts of the country, who also had my rare condition, had surgery there, and now live normal lives.

It is an exciting prospect.  The surgeon requires a commitment to stay in the Cleveland area up to six weeks for surgery and follow-up, until I would be released to fly home with my husband.  After that a 6-month recovery is expected (no driving the first 3 months) but, I would be home.

The surgery has been preauthorized by my insurance company and estimated to cost around $200K. Luckily, that will cover most of the expense, but not all. In addition to the uncovered medical expenses, there will be airfare for two, lodging in a studio/kitchenette hotel room for possibly six weeks, rental car, and other miscellaneous living expenses.  

I am in need of $15,000 to make this dream of normal life a reality.

Any amount of help you can give will be appreciated beyond words. While I do not look forward to major surgery, I do look forward to living the second chapter of my life more normally - being able to enjoy the simple things – like being able to eat a meal without pain and lying down to sleep.

Please watch this very short video of my highly-esteemed surgeon, Dr. Kareem Abu-Elmagd, which conveys his warm and compassionate nature toward his patients and his work:


Please share this campaign on your Facebook, Twitter and other social media accounts, using this link:
https://www.gofundme.com/NadineMajorSurgery

Thank you.
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Update 16
Posted by Nadine Goranson
10 months ago
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1
1
Home in Portland, OR, recuperating and reflecting on what a journey this has been. Feel the need to say another big THANK YOU to everyone for your love and support. I couldn't have done this without you.
************Thank you!!!*************
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Update 15
Posted by Nadine Goranson
10 months ago
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Tomorrow I will be one month post-op. Every day is different - hard to find that fine line between rest and movement, but for me, I am finding REST is really important. Thru this process, one MUST celebrate small victories, and know that difficulties will pass. I am so grateful for this surgery, now that I know things were MUCH worse inside me than I had originally thought. Life-saving procedures are now possible, tho not long ago, not only were the problems potentially fatal, the mortality rate for this surgery was 100%. I am so thankful to the surgical team and the bravery of Dr. Kareem Abu-Elmagd, who continues to help people with this condition. And, I am grateful to all of you and offline donors, who made this surgery a possibility. Thank you. <3
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Update 14
Posted by Nadine Goranson
12 months ago
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In two weeks, I will be undergoing major surgery. We are getting SO close - close to this complex journey - so close to life-changing major surgery, (complete with 50+ staples/stitches closing a very large incision,) so close to weeks in the hospital, weeks of recuperation in Cleveland, then 3 - 6 mos. of recuperation at home in Portland - AND we are getting closer to our financial goal for this endeavor. We couldn't have done this without you, and we are so grateful. Time is running out, please help if you can. Thank you all for your continued love and support! <3
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Update 13
Posted by Nadine Goranson
12 months ago
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WE'RE SO CLOSE! Only ten days until we leave for The Cleveland Clinic. We are getting SO close - so close to this crazy journey - so close to life-changing major surgery, complete with 50+ staples/stitches and a Frankenstein-incision (not gonna lie, getting a little nervous,) AND SO CLOSE TO OUR FINANCIAL GOAL. Time is running out, please help if you can. Thank you all for your continued love and support!
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Read a Previous Update
Geri Ann Fratello DeRango
14 months ago
2
2

I always knew you were special, inside and out - best of luck, Sweetie. Love you! ❤️

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Sue Catholdi Janowski
14 months ago
1
1

We wish you the best! Go get better!!!!

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$12,020 of $15k goal

Raised by 172 people in 14 months
Created February 5, 2016
SB
$20
S B
9 months ago
1
1
$50
Amy Hay
10 months ago
1
1

I just had to round it up. Love you lady! Can't wait to break bread with you. ♥

CA
$50
Christine Anderson
11 months ago
1
1

I'm donating as a long-time friend of Karen Sheldon. Best wishes to you, Nadine!

KS
$40
Karen Sheldon
11 months ago
1
1
LC
$100
laura mannell cripps
11 months ago
1
1

My thoughts and prayers are with you and your family, Nadine. Sending much Mojo your way !!

HP
$50
Holly Polinkus
11 months ago
1
1
LB
$50
Laura Brubaker-Wittman
11 months ago
1
1
$300
Anonymous
11 months ago
1
1
BM
$30
Brendon Mount
11 months ago
1
1
KH
$5
Kristin Hoffmann
12 months ago
1
1
Geri Ann Fratello DeRango
14 months ago
2
2

I always knew you were special, inside and out - best of luck, Sweetie. Love you! ❤️

+ Read More
Sue Catholdi Janowski
14 months ago
1
1

We wish you the best! Go get better!!!!

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