Missy's Fight for sight/ healthcare

$28,795 of $50k goal

Raised by 103 people in 31 months
Missy's Fight  WILDOMAR, CA
My husband Peter and I became concerned in December of 2014 when we saw Missy constantly cleaning her glasses. After multiple hospital stays and several misdiagnosis an MRI showed a mass in Missy's brain. On Feb,2015,Missy had surgery to biopsy the tumor, an optic sheath meningioma which is usually benign and generally slow growing. However, a follow up MRI two months later showed that the there were bilateral tumors, one was growing faster than expected. Missy started a 9 week radiation treatment plan in March 2015.

When we learned of Missy's tumors we were devastated, scared and angry. Our mentor in this process was none other than our Missy. She is such an encouragement to us, always wearing an armor of faith despite the fact she is now permanently blind out of her left eye, due to the irreparable damage of the tumor on the left side. Missy is also partially blind out of her right eye. Even though she continues to undergo difficult medical treatments and procedures she Goes through all of it with faith.

Based on our experience, I started looking into every possible hospital that could help us with a second opinion. Unfortunately, our insurance did not approve many options. We recently reached out to St. Jude. Although they were very compassionate, they do not have any experience with what Missy is going through. Missy's tumors remain to be one of a kind. There is not research on such rare tumors. We remain baffled but faithful. Little did I know that our daughter,Missy, would teach us so much about how to have faith in God. My sweet teen has taught me so much about how to be thankful in all situations. Our sweet girl lives everyday with debilitating brain tumors, she has regressed so much. She will forever need full time care. It does not stop her from having faith that can move mountains.
Please help us pray for a miracle in 2017.
God bless




God Bless!
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 226 total shares
Update 79
Posted by Jake Sulli
1 month ago
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I pray you all had a wonderful Christmas season. Wishing you only the very best in this New year.
So far this year it has been a very busy one with Dr.appointments and retesting.
We have a busy couple of more weeks to go.
Please help us pray for a miracle this year.
Merry Christmas
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Update 78
Posted by Jake Sulli
3 months ago
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Thank you so very much for all your prayers, sweet messages and phone calls. It truly means a great deal to my family and myself.
This has been a very slow recovery for me, (3 surgeries in 4 weeks)It has been a time of learning to deal with discomfort . I have to share with you. There was an excruciating torture with the thought of never seeing our girls again. So many thoughts raced through my head. Who would raise our girls?? Who would care for Missy's multiple needs??
I plead with The Lord to save me and he did. I am truly so very blessed to be alive. My Dr's say I am a miracle. I give all The praise to God.

I have had to reschedule all of Missy's appointments.
We just completed half of our appointments. We are anxiously awaiting some of the results.

I pray the same miracle I was fortunate to have. Missy receives the same.

Please continue to keep Missy in prayer. Thank you so very much!!

A very special thank you to My mother in law ( Nanny, Gram) for coming all the way from NY to help care for our girls. My dear friend Ramona for being there for our 3 girls. All of the beautiful cards and loving messages I received. I cannot express my gratitude enough. :)
One of Missy's biggest supporters.
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Update 77
Posted by Jake Sulli
5 months ago
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This morning I am asking prayer for Missy's Mom Karen and for this sweet family. Karen has been in the hospital since Thursday with internal bleeding she has had two surgeries since then. Her blood counts have still been at critical ranges. She has had several transfusions. Karen is the main care giver for Missy, Brooklyn and Bailey. Please pray for all of them. Peter has been trying to balance being there for his girls and for His wife. It is very difficult for them since they do not have family that live local.
Thank you for your prayers.
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Update 76
Posted by Jake Sulli
5 months ago
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Good Morning, Thank you to all of you that continue to contact me to find out the latest updates with Missy. We appreciate the constant prayers.
I recently had a meeting with Missy's Dr's to find out the latest results of her extensive testing. Unfortunately, it was not the results we were praying for. As long as these tumors are present. Missy will continue to regress in many areas.

I am happy to tell you. St. Jude hospital has her case and will be reviewing with a team. They are extremely thorough and waiting upon more records. Please help us pray they will have a treatment plan to help.

Thank you for your constant thoughts and prayers. We really could not get through this journey without all your love and support.

God bless!
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 226 total shares
Read a Previous Update
Susan Jackson Cole
5 months ago

Our thoughts and prayers are with you

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Amrita Deosarran
13 months ago

My daughter is also blind in her left eye. She has scar tissue on her optic nerve, due to a rare genetic condition. Best Wishes!

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$28,795 of $50k goal

Raised by 103 people in 31 months
Created July 7, 2014
Missy's Fight  
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Brad Hadley
6 months ago

My prayers are with you all

$50
Terry Clements
7 months ago
Susan Jackson Cole
5 months ago

Our thoughts and prayers are with you

+ Read More
Amrita Deosarran
13 months ago

My daughter is also blind in her left eye. She has scar tissue on her optic nerve, due to a rare genetic condition. Best Wishes!

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