Rivera Family Medical Costs

Hello my name is Lacey Rivera, mother of 4 children ages: 9, 7, 6, and 18 months!! Our family has recently been going through a lot of medical issues. It all started with my 6 year old Jenifer. She started having leg pain, so we took her to our family doctor. The dr told us that it was probably because she had flat feet and she referred us to a pediatric orthopedic doctor, thinking that she would just need special inserts for her shoes. Well the day came to see the orthopedic doctor, and as he started his exam, he realized that Jenifer had ABSOLUTELY NO REFLEXES at all!! So he immediately stopped and said she needs to see a neurologist, ASAP! He didn't say what it could be or anything. So they referred us to a pediatric neurologist, which was going to take 2 month to get in. Evidently the neurologist thought that it was urgent that Jenifer be seen, so they called and got her in within 2 weeks. When we got to the appointment for the neurologist, he started his regular exam, and also found that Jenifer has no reflexes and that she also has the growers sign (where she pushes off to stand from a sitting position) she has no feeling in her toes, and she's very very double jointed (floppy) in every joint. They did ultrasounds from neck to toe on her muscles and also a CK blood test. The results came back, she has Collagen VI Muscular Dystrophy! The doctor says it genetic and that more than likely she's not the only one that has it in the family. I was tested 2 weeks later and found out that I also have it, my muscles are disintegrating, and the only muscles in my body not affected at this time are my biceps. We have an appointment for my littlest daughter, Sofia (18 mths) on August 8th to see if she also has it, which the dr already thinks she does and her health is a little worse as she also has breathing issues. We are needing help with medical bills and to be able to pay for things like genetic testing for all of our children (as our insurance does not pay for it) the braces that Jenifer needs, physical therapy costs, etc. Thank you for helping us in these hard times that we are going through. It is very rough as you can imagine, going from one day thinking its just growing pains, to the next finding that we have muscular dystrophy. I want to thank dr. Collins our neurologist for helping us through these times as well and telling us about the MDA and Gofundme. Please share and God Bless!