Team Autumn
Donation protected
Some may know them and some may not but Megan and Bryan have had major ups and downs when it comes to starting a family. Finally they were blessed to have their sweet little girl,Autumn. With Her being stuck in the NICU, the back and forth to the hospital, and all the bills we wanted to put their mind a little at ease so this could be the last thing they need to worry about. Any donations would be greatly appreciated.
Below I have attached what we know so far!
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The past few days were a few more rough ones. The neurology team ordered another EEG read on Autumn, initially it was only going to be a 4hr read but after seeing approximately 4-5 seizures an hour they left it on until we got there yesterday. The neurologist then came and met with us letting us know those seizures were consistent the entire time the EEG was on. They started her on a low dose of phenobarbital as opposed to giving her a load dose because giving her a load dose would've suppressed her breathing. She then ordered a head ultrasound to confirm her suspicions, which it did. Her diagnosis of Autumn is that there is still no brain activity her EEG reads flat when it should have a "roller coaster" appearance to it. The ultrasound showed holes all thru her brain, it kind of looks like "swiss cheese" as she put it and that the seizures are more than likely the few brain cells she has dying off. She went on to tell us what she anticipated Autumns future to look like, her brain cells will continue to die for the next 4 to 6 months and she will be in a semi vegetative state where she will go through periods of opening her eyes and making small movements but she will not develop more past that and there is no guarantee how long she will be with us. Today we sat down with our Drs and were asked what we wanted to do. As parents for even as short of a time we have been to her we want what's best for her and we want her to be as comfortable as possible. We dont know how long we get to have her for, but we will do everything we can to keep her comfortable and give her as much love as we can. We told the Drs we will not do anything artificial to prolong her life, but that we would be bringing her home to enjoy her as much as we can for as long as we can today she passed her car seat test and we will be bringing her home some time this weekend. Weve had THE BEST team of Drs and nurses working with us through this whole experience, we couldn't be more grateful! A few stopped by to say goodbye today because they wont be here over the weekend! More pictures of us going home to come!
Below I have attached what we know so far!
——————————-
The past few days were a few more rough ones. The neurology team ordered another EEG read on Autumn, initially it was only going to be a 4hr read but after seeing approximately 4-5 seizures an hour they left it on until we got there yesterday. The neurologist then came and met with us letting us know those seizures were consistent the entire time the EEG was on. They started her on a low dose of phenobarbital as opposed to giving her a load dose because giving her a load dose would've suppressed her breathing. She then ordered a head ultrasound to confirm her suspicions, which it did. Her diagnosis of Autumn is that there is still no brain activity her EEG reads flat when it should have a "roller coaster" appearance to it. The ultrasound showed holes all thru her brain, it kind of looks like "swiss cheese" as she put it and that the seizures are more than likely the few brain cells she has dying off. She went on to tell us what she anticipated Autumns future to look like, her brain cells will continue to die for the next 4 to 6 months and she will be in a semi vegetative state where she will go through periods of opening her eyes and making small movements but she will not develop more past that and there is no guarantee how long she will be with us. Today we sat down with our Drs and were asked what we wanted to do. As parents for even as short of a time we have been to her we want what's best for her and we want her to be as comfortable as possible. We dont know how long we get to have her for, but we will do everything we can to keep her comfortable and give her as much love as we can. We told the Drs we will not do anything artificial to prolong her life, but that we would be bringing her home to enjoy her as much as we can for as long as we can today she passed her car seat test and we will be bringing her home some time this weekend. Weve had THE BEST team of Drs and nurses working with us through this whole experience, we couldn't be more grateful! A few stopped by to say goodbye today because they wont be here over the weekend! More pictures of us going home to come!
Fundraising team (3)
Megan Schultz
Organizer
Severn, MD
Mikayla Odonnell
Team member
Karen Powers
Team member
