Jon Downing Needs Your Help

$11,700 of $20,000 goal

Raised by 63 people in 39 months
Derek Downing
on behalf of Jonathan Downing
 TREMONT, IL
Jon Downing is an incredible father and husband battling a terrible cancer--multiple myeloma. Unfortunately, there is no cure for this disease. He is only 35 years old with 2 young children: Arianna, who is 6 years old and Samuel, 2. We ignorantly think cancer will not rear it's ugly head to those close to us, but reluctantly, we've had to accept this terrible affliction has struck an intensively loved individual, precious beyond words. He spends his days providing for his family and spending quality time with his children during the evenings and weekends. 

On May 26, 2010, Jon was admitted to OSF St. Francis Medical Center after collapsing at home in severe back pain. CT and MRI revealed a spinal lesion and destruction of a thoracic vertebra. He underwent surgery to remove the tumor and stabilize the spine. He returned to work after a 6 week recovery.  The tumor was malignant. Close monitoring would include labs and MRI and follow up with Illinois Cancer Center. We would look forward to him reaching the 'five year mark' which meant the chances of a return of cancer would be very low. 

Jon did very well with no sign of new tumors until he experienced an episode of severe back pain again in October, 2015. Labs and MRI indicated multiple spinal lesions in region of the pelvis. He was diagnosed with multiple myeloma. Chemotherapy was recommended and a back brace. 

Since the initiation of chemotherapy which required weekly visits to the oncologist and frequent diagnostic testing, Jon has had to miss 1 to 2 days of work per week. 

Jon is scheduled for a stem cell transplant in Chicago in March. He will undergo a procedure to collect the stem cells in February, and then return in 1 week for 3 days of high dose chemotherapy, followed by a stem cell transplant. He is expected to be in the hospital for 18 days, released to a local 'medical apartment' for 2 weeks before returning home. He has been told to expect to be off work between 2 to 6 months. He is hopeful to achieve remission for multiple myeloma. 

Although Jon and his family are very thankful for good medical and disability insurance, medical expenses and loss of income will be substantial. We understand it's  an unrealistic goal to ask the community to relieve him of the total cost of his treatment, any contribution would be graciously accepted. There is no donation too small.
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Good afternoon everyone, I wanted to say thanks again for all for support over the last few months during this experience. I have been home for a few weeks now recovering from the stem cell transplant and regaining strength. Things have gone well; the transplant was effective in further destroying the cancer and the doctors have suggested a clinical trial as the next step in treatment. Last week I was in Chicago for testing to determine the current amount of myeloma still in the body and for the purposes of determining a baseline for the clinical trial. If accepted I will be put in either a control group taking a "maintenance dose" drug that is currently standard of care for post-stem cell transplant multiple myeloma patients or put in an experimental group that would take a combination of three drugs for either 6- 36 months. The duration of the trial would be 36 months. I am looking forward to returning to work tomorrow part time for a few days and then go full time soon after if things progress well.
Again, many thanks again to our family and friends, the Uftring family and Auto Group and all the many others who have been a help in so many ways. We are truly grateful.
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Jonathan is continuing the good fight and will hopefully be discharged from the hospital this Monday. He will then remain in a nearby specialized Apartment clean room for two weeks. Jon sends his thanks to everyone and shares in our amazement at the generosity and encouragement which has come from you all. Thank you for continuing to share his story, taking the time to write a kind word, or being able to assist with the fiscal burden. All of it has touched our hearts and means so much.
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Jon has begun the stem cell transplant today!
#ThumbsUpCancerDown
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Great News! Jon has conquered his viral infection and is scheduled to finally be admitted for chemo and stem cell transplant tomorrow the 25th! The kind words, prayers, and donations, have been of great help and assistance, thank you all for your continued support.
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Read a Previous Update
Connie Haase
39 months ago
6
6

As Jon's mother and stepfather, we are overwhelmed by the kindness, generosity, and well wishes. Thank you all!

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Laura M. Hoffman
39 months ago
6
6

Please consider helping the family with evening meals. I have set up a CareCalendar account for this. I will contine to update more needs (childcare, errands, rides, etc.) as we go. Check out the link below to access Jon and Mandy Downing 's CareCalendar site. http://www.carecalendar.org/logon/230505 Enter the following information in the appropriate spaces:      Calendar ID   :   230505      Security code :   9112 Thank you and God Bless

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Mandy Downing
39 months ago
6
6

Just wanted to let everyone know how blessed and amazing your support and prayers have been. Thank you from Jonathan and I for all your love as we go through this journey. We are keeping positive and hoping and praying for a good outcome. Thank you all again to the many who have donated already. Words can't describe how much we are thankful.

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Jenifer Britton
39 months ago
4
4

John my husband had the same stem cell transplant with dr Todd Zimmerman call him Chuck Britton (630)715-5041

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Lorinda Downing Guariglia
39 months ago
3
3

We love you Jon Jon!! You are so precious to our family!!! What a journey this has been so far for you. Your optimism and general outlook on life is an inspiration even for those who aren't battling a terrible disease! So thankful for the outpouring of support so many people have given for you!!

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Jim Weber
39 months ago
2
2

Hi Jon Thank you and your family for your prayers. My family and I are praying for you also. God Bless You and your family.

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Jim Weber
38 months ago
1
1

Great news about the stem cell transplant. We pray that all goes well.

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$11,700 of $20,000 goal

Raised by 63 people in 39 months
Created February 19, 2016
Derek Downing
on behalf of Jonathan Downing
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$500
Anonymous
35 months ago
2
2
$100
Anonymous
37 months ago
2
2
$3,000
Anonymous
37 months ago
4
4
AA
$500
Anonymous Anonymous
37 months ago
4
4

Our thoughts are with you!

LA
$100
Lois Akin
38 months ago
4
4
$15
Nicole Gory
38 months ago
4
4

I'm sorry I can't do more at this time. Sending lots of healing vibes your family's way!

$1,000
Anonymous
38 months ago
4
4
TG
$50
Tracy Glover
38 months ago
4
4
SW
$50
Sheila Wyatt
38 months ago
4
4
RV
$50
Ryan & Kim Vogelzang
38 months ago
4
4
Connie Haase
39 months ago
6
6

As Jon's mother and stepfather, we are overwhelmed by the kindness, generosity, and well wishes. Thank you all!

+ Read More
Laura M. Hoffman
39 months ago
6
6

Please consider helping the family with evening meals. I have set up a CareCalendar account for this. I will contine to update more needs (childcare, errands, rides, etc.) as we go. Check out the link below to access Jon and Mandy Downing 's CareCalendar site. http://www.carecalendar.org/logon/230505 Enter the following information in the appropriate spaces:      Calendar ID   :   230505      Security code :   9112 Thank you and God Bless

+ Read More
Mandy Downing
39 months ago
6
6

Just wanted to let everyone know how blessed and amazing your support and prayers have been. Thank you from Jonathan and I for all your love as we go through this journey. We are keeping positive and hoping and praying for a good outcome. Thank you all again to the many who have donated already. Words can't describe how much we are thankful.

+ Read More
Jenifer Britton
39 months ago
4
4

John my husband had the same stem cell transplant with dr Todd Zimmerman call him Chuck Britton (630)715-5041

+ Read More
Lorinda Downing Guariglia
39 months ago
3
3

We love you Jon Jon!! You are so precious to our family!!! What a journey this has been so far for you. Your optimism and general outlook on life is an inspiration even for those who aren't battling a terrible disease! So thankful for the outpouring of support so many people have given for you!!

+ Read More
Jim Weber
39 months ago
2
2

Hi Jon Thank you and your family for your prayers. My family and I are praying for you also. God Bless You and your family.

+ Read More
Jim Weber
38 months ago
1
1

Great news about the stem cell transplant. We pray that all goes well.

+ Read More
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