KJ's journey to cure his Sickle Cell Dis
KJ's sickle cell began to manifest a few months before his 5th birthday, doctor's informed his parents that he was at risk of suffering strokes due to the lack of blood flow in his brain. To prevent him from suffering unimaginable pain, KJ began a series of blood transfusions.
We were inspired by the many stories of successful bone marrow transplants used to cure sickle cell disease. Three years ago we had the surprise of our lives when we learned we were pregnant with twins! Concerned that the twins could also have the disease, they were tested in utero and they were found to be sickle cell free. And,the news just gets better from here, KJs's twin brothers, Kalen & Karson are a perfect bone marrow match for their big brother.
So the journey to cure KJ begins. His treatment plan consists of 10 days of chemo, 1 day transplant of stem cells, 6 weeks or more of hospitalization. First 100 days after discharge will be followed by 1 to 2 times a week clinic appointments; they will become less frequent as he recovers.
Many people have expressed interest in supporting our family as we embark on this year long journey to cure KJ of sickle cell. Many of the costs are covered by insurance. All donations will help for temporary lodging, food, and travel expenses. Other costs include medical and prescriptions not covered by insurance.
Of course, financial help is not the only way to offer support. You can send cards, letters or emails; and most of all send your prayers!
Mail can be sent to KJ McKenzie & Family 35560 Grand River #227 Farmington Hills, MI 48335-3120.
Thanking you in advance for your prayers, love, support and other acts of kindness.
Hallelujah!!! In the midst of the 2014 Arctic Vortex, KJ came home from the hospital yesterday! Wow, he really is a SUPERHERO, and he's only 5!
This is a major step in his recovery process. While many baby steps lie ahead, KJ continues to amaze doctors with how he's faced his recovery challenges with such grace and determination.
During is home based recovery, mom and dad will be more hands on. Making sure KJ takes 11 pills every morning, 6 pills every night, checking his blood pressure twice a day, and running his IV machine daily. I'm sure this can be overwhelming for anyone, however, God doesn't give you more than you can bear. Tamiko has such grace and patience. Keith is strong and determined. And, together, they are focused.
Lovingly Submitted by:
-Love Always, Charisse'
This too shall pass..
So what's next?.. Now we wait..within 1-2 weeks after receiving new bone marrow, KJ's white blood cell count will continue to decrease and may remain low until new bone marrow cells begin to grow. Without white blood cells to fight bacteria, viruses and fungi, KJ is at a greater risk of developing infections.
He will remain hospitalized through December 31 or longer, if need be. Whatever it takes!
We are getting by with God's blessings and your prayers and support, please keep them coming as we still have a long road ahead.
Thanks for joining us on this journey for a cure!
my prayers are for you and your family
Lisa Whitmore Davis and I are with you and Keith all the way , God is in the plan!!
On behalf of the McKenzie family: Thank you for your support, kind words and donations. One thing we know for sure is that we have the support of family, friends, neighbors, co-workers and complete strangers. And we are so very thankful for you all. There have been times when we've been so emotionally and physically drained that your prayers and well wishes helped get us through. On this day of Thanksgiving we are very grateful to have you in our corner. God bless you and yours during this holiday season.
To Mr. and Mrs. McKenzie, KJ, and Friends. My name is Freda Young, and I represent SizzleZing. I can be reached at (313) 575-3752. I am touched and moved by KJ's story, and my prayers are with KJ, his family, and friends. My sister has the Sickle Cell trait, and I would like to introduce an idea that I know will raise the amount of funds that you are seeking to raise to support you on your journey to cure KJ. I propose that you create a fundraiser for KJ using SizzleZing. SizzleZing provides an opportunity raise funds for KJ and to further the Sickle Cell cause by informing people all over the world about the struggles that people with Sickle Cell must endure and, more importantly, about the journey to recovery of one little Boy and the community that supports him. Give the Gift that keeps on giving: Please review the following information and get started now. 3 Minute Call: 267-507-0255 Pin is 69402921 Join through My website: http://www.sizzlezing.com/fancyfree Our Social Site to inform others also offers an additional income stream to support KJ. http://fancyfree.socialzing.me/ Click on the following link below and See and hear how Pastor Lofton is helping his church and his membership achieve financial freedom. The same can be done to financially support KJ over the coming years. http://www.ministryfunds.info For more info, please call me at the above number.