Team Davon for Sickle Cell

$1,860 of $10,000 goal

Raised by 39 people in 72 months
Could you imagine if you had to aim to make every day of your child's life a magical moment because you never know which day will be their last day with you or on earth? 

Living every moment like it's your child's last moment is a mental journey that I would never wish on anyone.  

This is exactly what Sickle Cell is doing to my Prince Davon as well as so many other families across the nation. 

Davon is my ten year old who suffers from Sickle Cell Disease. He has spent about 90% of his life inpatient in the hospital, has had ten surgeries, to include the removal of his spleen and gallbladder. He has been on blood transfusions since he was two months old and will continue on blood exchange transfusions for the rest of his life. He currently needs 5 to 8 bags of blood every 4 weeks and has a double lumen port in his chest. He sometimes uses more than 8 bags of blood in a month. He has a two page list of daily medications and he has multiple foods, medication, pet, and environmental allergies. Davon has had 2 strokes and has damage on both sides of his brain and has recently developed a brain malformation in 2012. He currently sees 23 specialists at Children's National Medical Center, including his primary care provider.

It is important to raise the awareness for Sickle Cell because for children, the quality of care is bad and once they transition to adult care there care becomes horrible. They often do not receive the care that they need and are labeled as drug addicts by medical providers. Employers don't understand, making it hard for parents and guardians to get or maintain a job to provide the basic needs for their family. Social Services/Government Agencies don't understand making it hard for families to get the resources they need and they enforce laws that should not apply to their situation. Families and friends don't understand which often leave individuals and families fighting their battle alone. It motivates me to do more when I hear the Sickle Cell community won't seek medical attention because of how they are going to be treated and to hear the many stories of the Sickle Cell Warriors who have loss their lives and should not have, this applys to children and adults.



This illness has been around far to long for so many people to not understand its impact or get involved.

Team Sickle Cell! I am the difference! But Together We are the Difference!

Helping Young People Excel and Develop's Davon D. Williams Sickle Cell Foundation  has been developed to increase the awareness around Sickle Cell Trait and Disease and provide a link to the bridge that separates programs and services from those affected by Sickle Cell. Funds raised will be used for things such as a resource to fund equipment, supplies, space, food, medication, childcare, parking, meal tickets, gift cards, food, clothing, holiday support, transportation, utilities, events, activities, etc. 

Sickle Cell Movement: Davon D. Williams Sickle Cell Foundation

Davon D. Williams, the Susan G. Komen of Sickle Cell.
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Popcorn, snow cones, cotton candy, food, face painting, airbrush tattoos, hair cuts, make-overs, nails, moon bounce, entertainment, book bags with school supplies and more.....Randall Recreation Center 820 South Capital Street SW Washington, DC 20024 (South Capital & I Street SW) Saturday August 6, 2016 from 9am - 4pm
Blood Drive
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UPDATED FLYER: It's going down Saturday.....We will be doing it big for Davon, children who receive care at Children's hospital and the entire Sickle Cell Community. Share! Share! Share! Randall Park 820 South Capital Street SW (South Capital and I Street)
Share! Share! Share!
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Register to Donate Blood for Davon and children who receive care at Children's Hospital on August 6, 2016.

The blood registration link for the event is now open. Please click on the link below to schedule your blood donation appointment. If you would like for me to schedule your appointment please inbox me with the following: Full Name, Date of Birth, Gender, Blood Type (If you know it), Email Address, Phone Number (s), Time Slot between 10am - 3pm (every 15 minutes)

While registration to donate blood is not mandatory we highly recommend it to help us with staffing for the blood mobile.

https://www.cnmcblooddonor.com/index.cfm?group=op&step=2&opid=4085
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The blood registration link for the event is now open. Please click on the link below to schedule your blood donation appointment. If you would like for me to schedule your appointment please inbox me with the following: Full Name, Date of Birth, Gender, Blood Type (If you know it), Email Address, Phone Number (s), Time Slot between 10am - 3pm (every 15 minutes)

While registration to donate blood is not mandatory we highly recommend it to help us with staffing for the blood mobile.

https://www.cnmcblooddonor.com/index.cfm?group=op&step=2&opid=4085
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$1,860 of $10,000 goal

Raised by 39 people in 72 months
Created September 22, 2013
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JB
$10
Josiah Barnes
37 months ago
JS
$20
Jasmine Stith
40 months ago
MT
$10
Moneick Tabron
40 months ago
$20
MsTrice Cunningham
40 months ago

Can't make it to the skate night but here is a donation

$20
Anonymous
40 months ago
JG
$50
jerome gerald
41 months ago

Sorry I can't come to the skate party, but I'm here for ya.... Love you & Davon.....

$20
Patrice Cunningham
42 months ago
JG
$100
Jerome Gerald
43 months ago
JG
$155
Jerome Gerald
43 months ago

hope this lil bit helps Cuz..... Love ya and lil man......

JG
$150
Jerome Gerald
44 months ago

I'm honored to help out

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