Cedric's Brain Surgery Recovery Fund
What Cedric has is called an atypical choroid plexus papilloma grade 2, which is very rare. It was confirmed through various scans that there was a "gross total resection" which means that the tumour has been 100% removed. It was localized, meaning that there are no other tumours growing elsewhere in the brain and spinal column. He does not require chemotherapy, and there is only a 17% that it may return and if that is the case we will explore chemotherapy as necessary.
Cedric will be closely monitored by Oncology with MRI scans every three months for several years, possibly less frequently as time goes on. We will also be doing genetic testing with Cedric, mommy, nana, and some of the "Head" side of the family to see if there is a link between the various cancers we've had in the family as well as all of the congenital heart disease to see if we can find which gene to watch for and to learn more.
We still have a long road ahead of us but we are so so grateful that we are not dealing with cancer in our baby boy.
A huge thank you to every single person who has sent love and healing thoughts to us today, and to everyone who has donated to our family
Discharged this morning on no painkillers except for Tylenol and Advil! We are still awaiting the pathology results, as they need to do additional stains but I am so happy to be back home with my boys!
We stopped for a lovely brunch with Nana then hit the road!
We'll be seeing a physiotherapist and possibly other specialists while he regains use of his muscles in his legs, as well as an optometrist to see if there's any vision loss from the surgery. We will also be back and forth with the neurologist frequently over the next year, then less frequently as time goes on.
Please keep praying that it's not cancer and that we don't need to add oncologists onto our "to do" lists!
Thank you again for all of the emotional and financial support ❤️
We have received news that the tumour has been completely removed, and the pathology is looking hopeful that we're not dealing with cancer.
Unfortunately, due to the location of the tumour he will need to relearn how to walk, and regain his right arm's function to full capacity. I am so unbelievably proud of this little man. He's come so far in four days since his surgery, and I can't wait to have my baby back. I've missed his smiles, his laughs, and everything that makes him special.
We are so lucky ❤️
Day one post craniotomy and he's restless. My little champion has been so brave and he just wants to go home. Every time he sees a doctor or a nurse he says "open door, bye bye". There's a fair bit of swelling but the main issue is the anxiety. He just wants mommy and daddy and tries so hard to not sleep, he just wants us next to him. Fingers crossed that we can get him to sleep soon so that his little body can heal.
Please continue sending healing thoughts so that we can bring our brave boy home sooner than expected ❤️
Such great news ! It is so wonderful that we have the healthcare facilities that we do ! I was talking Your in our hearts & prayers.
I'm so happy to hear about Cedric bouncing back so well! What a little fighter! Lots of love for continued good progress ❤️❤️
How wonderful! He's a trooper. I hope you will all be home soon and the months and years ahead are full of good progress, health & happiness! ❤️