ALS, You Will Not Beat Scott!

$9,410 of $20k goal

Raised by 74 people in 42 months
Colleen Spicuzza  STERLING HEIGHTS, MI
My dad was always fun and exuberant with life. In Decemeber of 2011 , my dad started to show signs of stress on his hands. At first we thought he had Arthiritis, one thing led to another, and after many tests, some painful, some not so much,the only option was ALS. My dad was diagnosed with Amyotrophic Lateral Sclerosis in early January of 2013. We have tried many countermeasures hoping that this was not the case. Hehs been very light hearted and positive about this, but in the past few months he has deteriorated to the point that communication is difficult as well as mobility, in reference to his hands and legs.
The main point of trying to raise money is to try and purchase a van that has full mechanics to move a wheelchair or to get more advanced technology that will allow for better communication or easier functioning, neither of which comes cheaply. I know the chance to keep a relatively normal lifestyle for him would be the best thing for his current situation, especially watching Jake play hockey and watch me bowl. Anything that can be donated is helpful and everything is appreciated.

I don't have a set goal,I just want to be able to see some happiness and easiness for my dad's life, so every bit helps.
Thank you for any and all contributions and please spread the word.

This is an extra fundraising opportunity on top of the bowling fundraiser that we will be putting on October 11th.
Don't feel pressured into anything. Everything even thoughts and prayers are appreciated.








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Update 16
Posted by Colleen Spicuzza
31 months ago
You are invited to join the family at a Memorial Service in celebration of the life of Scott Spicuzza, who passed away on April 24, 2014.


It will be held on Sunday, June 1st, promptly at 1:00 - 3:30 p.m., at the M.R.C.C. Banquet and Convention Center at 23401 Mound Rd., in Warren Michigan.



To acknowledge Scott's passion for hockey and love of life, everyone is requested to wear a hockey shirt/jersey if they have one or if you don't, at least something bright and cheerful - no black please. Let us all feel the glow of Scott smiling down on us as we gather to celebrate him and share memories of the times you had together.



In order to enable us to accommodate everyone who wants to attend, please let us know if you will be able to join us for dinner following the service, at approximately 1:45 p.m.



Number Attending ____

We would appreciate a response no later than Saturday, May 24th.

If you don't have my email or are not on FB with me please put a comment on this page if you are attending and how many to give us an accurate count.

If you think there is someone who I have missed on the invites please pass this along to them.



Thank you.

The Spicuzza Family

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Update 15
Posted by Colleen Spicuzza
36 months ago
I hope that this website, the facebook page, and anything else we have done will have impacted you in some way. To be able to share this information and create an awareness for this devastating disease is such a comforting thought when thinking about how our life is. I hope that by being able to share our experience will help to bring more research and funding towards this disease to stop other families from feeling the anxiety, sadness, and anger that I have felt.
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Update 14
Posted by Colleen Spicuzza
36 months ago
It has been quite a while since we have posted anything, but Scott is doing as well as to be expected.
We have learned the hardships that this disease brings and with the help of others that are in the same position as us, we found the Care Calendar. It allows people to go in and see what I going on with us, stay updated, and help out if they so please. I will literally be sending this to every single contact I have, whether you wish to help or not, I hope that you can look at it and know that this type of help exists for people, if you are to ever come across friends or your own family that needs this kind of help.



The HELPER logon is used by family and friends
that would like to sign-up to help a loved one.

To access Spicuzza Family's personal CareCalendar site,
visit http://www.carecalendar.org/logon/167109 and enter
the following information in the appropriate spaces:

CALENDAR ID : 167109
SECURITY CODE : 1508
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Update 13
Posted by Colleen Spicuzza
39 months ago
Scott got his Tobii computer on Wed. If any of you got to see the news report on channel 4 the other day it explained a bit about it. This can be a more permanent fixture on his wheelchair for him to be able to communicate plus it will do just about anything his normal laptop will do. Pretty amazing.
Scott did have his first outing by himself this week too. He went to get his haircut, so be on the look out because you never know where you might see him zooming around, and when I say zooming, his chair really cruises.
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Read a Previous Update
Help spread the word!
 334 total shares
Linda LaGassa White
42 months ago

This man worked with my husband up until last Friday. If you know Scott, please consider contributing to this and share with your friends. Love, Linda

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DM Chege
42 months ago

Keep the faith! Hugs

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$9,410 of $20k goal

Raised by 74 people in 42 months
Created June 17, 2013
Colleen Spicuzza  
GB
$500
george brierley
36 months ago
CB
$150
Cathy Boyle
36 months ago

Usually at Christmas, my sisters, brother, and spouses pick/exchange names for Christmas gifts. This year, all the names in the hat are yours! Enjoy the season; Merry Christmas to the Spicuzza Family!

JB
$100
jacqueline blake
37 months ago

Lets look to the future and hope a miracle happens. Love you all

$50
Anonymous
38 months ago
DP
$100
Denise Polin
38 months ago
AL
$50
ALAN LAURENCELLE
38 months ago

We love you scott and pary everyday for you and your family AL

CS
$50
charlotte/myra surbis/jones
38 months ago

Hi Colleen, We can't be at Friday's fundraiser but want to contribute to it. I'm sure that it will be very successful as well as fun! Myra, Charlotte, and Josh

MT
$50
mark & nancy trombly
38 months ago

thinking of you and wish you all the best. take care

AG
$50
Angie Gareau
38 months ago

Hi Colleen, We would love to attend the bowling fundraiser, but cannot due to prior commitment. Our prayers and thoughts continue to be with your family and please do not hesitate to contact us if there is anything you need. We're right down the street and can be there quick! :) -Angie Gareau, Mike Sekich and family

TH
$100
Todd and Jennifer Hamilton
38 months ago
Linda LaGassa White
42 months ago

This man worked with my husband up until last Friday. If you know Scott, please consider contributing to this and share with your friends. Love, Linda

+ Read More
DM Chege
42 months ago

Keep the faith! Hugs

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