Only One In The WORLD with

Kaylee is 5 years old with a very rare cromasone deletion it's in the long arm deletion 1q32.1 Kaylee is nonverbal and has Autism. At 4 years old Kaylee's gallbladder had to be removed. It was full of black stones and covered in red blood cells. She is now anemic. She constantly has blood coming from her kidneys and Doctors are baffled! Kaylee stays in pain and has been admitted to the hospital several times. We are on the waiting list for Riley's hospital in Indianapolis and Cleveland hospital where Doctors specialized in rare stuff. Kaylee still needs a dynavox, money for gas to get to all these hospitals, hotel stays, food and medicines that's not covered by insurance. I try very hard to make sure Kaylee has everything she needs. Day after day watching your child in pain is heart breaking. Kaylee really needs support and we are so blessed for all the help that comes in so many forms. Anyone that knows Kaylee Doctors included know how much my baby suffers. I've watched my Dad pass away of brain cancer and 2 grandparents of lung cancer and let me tell you... that's pain. And compared to that Kaylee's pain is a 10. Momma fights for all the services ect Kaylee needs but I can't fight this one on my own.. believe me I've tried. Please help Kaylee