Amelia's Heart Fund
Donation protected
Back in February my sister Meredith and husband Randy went to their 20 week ultrasound appointment excited to find out the sex of the baby they would be having, not realizing what other information they would receive that would change everything and not make the gender all that important or exciting. As I anxiously waited at home for the phone call which did not happen I reached out to her to see if I would be having another nephew or maybe a niece this time. Instead I was responded by a text mentioning that my future niece appeared to have a multiptude of heart problems.
As the weeks and months have passed with many cardiologist appointments, it has been recommended that the baby, Amelia, is delivered down in Boston at the best Cardiology hospital at Boston's Children's Hospital.
Since the actual prognosis of Amelia's heart is unknown until she is born we are unsure if she could only need to stay for a week but could end up being a month or more.
Of course the health and recovery of Amelia's heart is everyone's main concern, but there is also an overlooming concern about how all the medical bills will be paid to care for Amelia and for the possible multiple heart surgeries throughout her life as well as to care for their other two children; Olivia 8 and Xander 2.5 and an older gentleman who has lived with them for 4.5 years who has intellectual and mental health disabilities.
Right now the plan is for Meredith to be induced at 39 weeks on July 13th so we hope that Miss Amelia stays in until that date.
Below I have included what Meredith and Randy have been told regarding their daughters conditions. Yes it's a lot and that is what makes this very frightening and overwhelming for them and their families. Any help would be appreciated. Thank you!
Amelia Joeann Inosencio has 2 large VSD's
A ventricular septal defect is a congenital defect in which there is a hole in the wall between the two lower chambers of the heart, known as the right and left ventricles.
In patients with VSD, oxygen-rich (red) blood passes from the left ventricle through the opening in the septum, and mixes with oxygen-poor (blue) blood in the right ventricle. This can place a great deal of pressure on the lungs.
Coarctation of the Aorta (COA)
In COA, there’s a narrowing of the aorta, the main artery that delivers oxygen-rich (red) blood to the body.
Why is COA a concern?
The narrowing in the aorta restricts the amount of oxygen-rich blood that can travel to the lower part of the body; the left ventricle must pump under higher than normal pressure in order to get oxygen-rich (red) blood through the narrowed opening and out to the body. The left ventricle becomes thick (hypertrophied). If the muscle becomes too thick and is no longer able to function efficiently and handle its workload, it will eventually fail (congestive heart failure).
Amelia has mild HLHS
Hypoplastic left heart syndrome. (HLHS) is a rare and severe heart defect. HLHS one of the most challenging congenital heart defects to care for.
In HLHS, most of the structures on the left side of the heart are too small and underdeveloped to provide enough red blood flow for the body’s needs. The most critical defect in HLHS is the small left ventricle, which needs to be large enough and strong enough to pump blood out to the body. If it’s too small, it simply can’t function effectively.
Each heart defect will require its own surgery.
COA- potential surgery at 1-7 days old. Potentially need surgery later in life to keep the aorta open if needed
VSD- potential surgery 2-3 months old
HLHS- 3 surgeries.
A few weeks old, 2-3 months old, 2-3 years old. Potential heart transplant in teens- twenties
As the weeks and months have passed with many cardiologist appointments, it has been recommended that the baby, Amelia, is delivered down in Boston at the best Cardiology hospital at Boston's Children's Hospital.
Since the actual prognosis of Amelia's heart is unknown until she is born we are unsure if she could only need to stay for a week but could end up being a month or more.
Of course the health and recovery of Amelia's heart is everyone's main concern, but there is also an overlooming concern about how all the medical bills will be paid to care for Amelia and for the possible multiple heart surgeries throughout her life as well as to care for their other two children; Olivia 8 and Xander 2.5 and an older gentleman who has lived with them for 4.5 years who has intellectual and mental health disabilities.
Right now the plan is for Meredith to be induced at 39 weeks on July 13th so we hope that Miss Amelia stays in until that date.
Below I have included what Meredith and Randy have been told regarding their daughters conditions. Yes it's a lot and that is what makes this very frightening and overwhelming for them and their families. Any help would be appreciated. Thank you!
Amelia Joeann Inosencio has 2 large VSD's
A ventricular septal defect is a congenital defect in which there is a hole in the wall between the two lower chambers of the heart, known as the right and left ventricles.
In patients with VSD, oxygen-rich (red) blood passes from the left ventricle through the opening in the septum, and mixes with oxygen-poor (blue) blood in the right ventricle. This can place a great deal of pressure on the lungs.
Coarctation of the Aorta (COA)
In COA, there’s a narrowing of the aorta, the main artery that delivers oxygen-rich (red) blood to the body.
Why is COA a concern?
The narrowing in the aorta restricts the amount of oxygen-rich blood that can travel to the lower part of the body; the left ventricle must pump under higher than normal pressure in order to get oxygen-rich (red) blood through the narrowed opening and out to the body. The left ventricle becomes thick (hypertrophied). If the muscle becomes too thick and is no longer able to function efficiently and handle its workload, it will eventually fail (congestive heart failure).
Amelia has mild HLHS
Hypoplastic left heart syndrome. (HLHS) is a rare and severe heart defect. HLHS one of the most challenging congenital heart defects to care for.
In HLHS, most of the structures on the left side of the heart are too small and underdeveloped to provide enough red blood flow for the body’s needs. The most critical defect in HLHS is the small left ventricle, which needs to be large enough and strong enough to pump blood out to the body. If it’s too small, it simply can’t function effectively.
Each heart defect will require its own surgery.
COA- potential surgery at 1-7 days old. Potentially need surgery later in life to keep the aorta open if needed
VSD- potential surgery 2-3 months old
HLHS- 3 surgeries.
A few weeks old, 2-3 months old, 2-3 years old. Potential heart transplant in teens- twenties
Organizer and beneficiary
Dianna Kilgallen
Organizer
Bath, ME
Meredith Inosencio
Beneficiary
