Zayden s Fairytale
When Mildred and Cristian found out they were expecting , they were so excited!! They couldn’t wait to hold Zayden in their arms , and one day hear him call them mommy and daddy.
Shortly after birth , Zayden started to have feeding troubles. When brought in for a check up , the doctor heard a murmur , although this is usually benign he sent him to the cardiologist to further evaluate.
That day change their entire world....
Zayden was quickly sent to Boston with a diagnosis of cardiomyopathy. Due to also being born with a rare brain disorder (agensis of the corpus callosum where there is an absence of the white matter connecting the two hemispheres ) Zayden would not be eligible for the heart transplant he so desperately needs.
Still more bad news came....
After seeing the best doctors in Boston , and genetics they had a diagnosis.
Vici syndrome is a very rare and severe congenital multisystem disorder characterized by the principal features of agenesis of the corpus callosum, cataracts, oculocutaneous hypopigmentation, cardiomyopathy and combined immunodeficiency. Children with this syndrome do not live past 5.
This is quickly shattered the hearts of everyone on Zaydens journey. To learn they don’t know how long they have.
His mother Mildred stays by his side day and night in Boston caring for his every need. Whether that is feeds through his ng tube or cuddles from a long hard day. She never leaves his side. And his father Cris sacrifices not being able to always be with his baby. He works countless hours to try to keep them a float. No parents should ever have to go through this or make the choices and sacrifices they’ve had to make. His Mommy and Daddy are so heartbroken but want to give him the best life they can! To let him live the fairytale that he so deserves!
Please donate financial support for the family . So they can worry a little less about financial troubles and more on enjoying every single moment together.
And please never stop praying for a miracle!