Zac- fighting tiger
There have been many downs and scary times!
The infection Zac had made him extremely unwell and had the medical team scratching their heads. He had an array of tests, MRI, ct scans, X-rays and so on. His 2nd Hickman was removed. He had mid lines, pic lines and cannulas inserted.
There were very serious talks about taking the little fighter to ICU. The ICU team were monitoring him hourly. The pain was excruciating for him and he was on very high pain meds for over a week. The whole time these things were going on, the medical staff were amazing! I cannot express enough my deepest gratitude to every single one of them! It's not often you have Drs and nurses weeping at the bedside with you.
We were transferred to an isolated room and Zac was able to rest and heal. Slowly but surely he started to improve. The extensive range of antibiotics were working! The sepsis was leaving his body and healing was happening.
My family support never stronger, keeping us strong and grounded, when to be honest I wanted to hide away. It's easy to do in that kind of environment. It's not easy on the rest of the family either. Our family life isn't normal by any means but it's our normal for now.
Sunday last week seemed to be the major turning point and Each day Zac improved. Pain meds being weaned down, TPN (the nutrion source) was still going because he was unable to eat. The infection was no longer detected in his blood so that was the best news!
The Drs had assured me that as quickly as the kids go downhill, they can pick up just as quickly. That definitely was the case! Zac continues to amaze his medical team. There were talks of being discharged Friday. I was skeptical, so when we were given the green light to leave today I was so happy!
The month had taken a massive toll on Zac and he was very wary and hesitant to do the tasks he had to do that would mean we were allowed out. After a huge pep talk from mum he got those things done and we were on our way. Fighting tiger was back!
He still has a way to go but just being in a home environment has already shown the advantages to his mental state.
Zac had a special visit during the week from a friend that had a gift made for him. Sadly Zac was not well enough to see them but I was. I am overwhelmed by the kindness of people during this time. Thank you Sozza, Stacey and Jake for coming by and giving Zac such cool gifts! He just loves his very own motor bike top, that is 1 of a kind.
A huge thank you goes to every single person that has sent gifts, cards, messages, calls and has shown their support. A lady named Lyn sent a card all the way from London! I don't know you Lyn but Zac was very impressed to know there are ppl all over the world thinking of him!
Thank you never seems enough but please know I appreciate everything!
I have formed friendships that will last a life time with other 'onc' families. Living at Ronnie house is hard but also a very special place. I'm thankful I was able to spend time there before we were placed in the apartment. Late night hospital coffees and chats are priceless!
Zacs fight isn't over just yet. He still has more chemotherapy and with that most likely will come blood transfusions and off days. I'm not sure when we will be home but we are a lot closer to that day!
Please continue to keep Zac and the rest of us in your thoughts and prayers.
Thank you is all i can say xx
Wow thank you everyone! I am speechless. Sure Nikki why not?!