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Breathe Easy

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I would like you to go find a straw you have lying around the house. Put one end in your mouth and breathe through it for one minute, then maybe try doing it for 10 minutes. I bet your now trying to catch your breath or coughing? Now try doing that 24 hours a day 7 days a week and you might have a small idea what Lindsay has to go through everyday of her life. She will never know the feeling that we all take for granted which is breathing good, we don't even think about it, it comes natural to us. Think of those hot humid days we have in Ontario and you feel like you cant breathe and its heavy, she feels like this all the time.
Lindsay has a chronic lung disease called Cystic Fibrosis she was diagnosed at the age of 4 months and was told she would not live past the age of 4. Cystic Fibrosis is the most common fatal genetic disease affecting Canadian children and young adults. The current life expectancy is currently growing at 50 years in Canada. At present, there is no cure. CF causes various effects on the body, but mainly affects the digestive system and lungs. CF patients have a very weak immune system and therefore are much more susceptible to colds and viruses. When a person with CF catches one of these they are commonly admitted to the hospital for on average of 2 weeks for heavy doses of antibiotics.           About Cystic Fibrosis 
Lindsay is now 28 years old, shes married and has adopted a now 15 month baby boy. She does a minimum of one hour of treatments in the morning and one hour of treatments at night she also must do 45 min to an hour workout everyday to ensure her lungs work at the fullest. Her hour treatments include her taking two medications through inhalation and a peri pep. Lindsay also must take 30-40 pills everyday each pill has a vital purpose that help key components of her body, example digestive system, liver, bones. Lindsay was also diagnosed with rheumatoid juvenile arthritis at the age of 8 . For this she must take two injections a week just to be able to move and function like you and I. As I'm sure you all know medication and medical equipment is not generally cheap. Lindsay's medication costs over $3500 a month and that's not including and equipment needed. She is unable to get any insurance because of her condition because even the ones were its guaranteed acceptance max out at a cap of $5000. So we have trillium which works okay they pay some of the cost but with a hefty premium also we found that there is always once or twice a year where they simply don;t pay for one claim one claim varies from $1000-$2000 each. But all this aside Lindsay and I have managed to work through these problems. So I am not asking for help paying those expenses I am asking you to help Lindsay live a full life and stay out of the hospital. I am looking to cover the cost of buying a Cystic Fibrosis vest which cost about $10,000 we have been trying to save money to buy one but there's always a medical expense that stops us. These vests are not covered buy any insurance but they are a very effective and one of the best ways to get rid of the mucus that builds up in the lungs of CF patients. 
So of you I ask you please help Lindsay Breathe Easy so that we can breathe together.

Organizer

Joey Delorme
Organizer
Johnstown, ON

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