Jacob Jones medical expenses

Jacob Alan Lee Jones was diagnosed with Tay-Sachs at 13 months.  Tay-Sachs is a rare genetic disorder.  At the moment there is no cure for this disease. Research is being done to try and help Jacob and other babies like Jacob. Right now Jacob’s parents, Erica and Justin, travel with Jacob to Minnesota for treatment every four to six months to try and help slow down the progression of the disease.  Jacob has had many surgeries to help him live a better life.  He has a G-J tube, a fundo, a shunt, a port and tubes in his ears.  He also has hearing aids and glasses now.  The medicine he is on from Minnesota has helped him to be able to lift his head and still be able to move his arms and legs.

If you would like to know more about Tay-Sachs you can read about it at http://kidshealth.ort/parent/medical/genetic/tay_sachs.html.You can also visit and like Jacob’s Face book page at http://www.facebook.com/pages/Prayers-for-Jacob-Alan-Lee-Jones/622427914481004