Wheels for Kmoney!!!

$35,121 of $36.3k goal

Raised by 110 people in 31 months
Sharon Brown  MIDDLEBURY, IN
Kamarion (ka-mar-e-on) a/k/a Kmoney is a darling 8 year old boy who is in need of a handicap van for transportation in his wheelchair.  He was born with a rare genetic muscle disorder X-Linked Myotubular Myopathy (XLMTM); which causes weak skeletal & respiratory muscles.   In addition to the van we need $3,000 for the lift feature needed on the power wheelchair we are working on getting him.  Insurance will not pay for this feature, "not medically nesssary", however it will allow him to raise his seat to reach things when he is in a non-handicap accessible environment and it will also help us with his transfers as he gets bigger so there is not so much lifting involved!

Kmoney had to have a trach and gtube at 39 days old and at 8 1/2 months old was put on a ventilator due to respiratory insufficency.  He was on the vent for 22 months, gained enough strength to breath on his own, and has been off the vent since Oct 15, 2010. We have been told by the Doctors that when he goes through his teenage growth spurt, his mucsles may not be able to keep up with the growth and there is a chance he will end up losing the strength we have worked so hard to build; he could lose the ability to sit up on his own and end up needing the vent again.  We pray this does not happen and continue to push on with therapy!

50% of the children born with XLMTM do not live to their 1st birthday, but we made it to 7!  Kmoney is in 1st grade, weighs in at 57 lbs, is over 48" tall and is quickly getting to big for a car seat so he will need to be transported in his wheelchair!  He does not stand or walk on his own, but uses a Kidwalk walker, trike, wheelchair, and his Mcqueen car for mobility!  He will soon be upgraded to a power chair which will require that we have a handicap van to transport him.  They  are quite expensive and his family is not able to afford one on their own, so they are reaching out to the community for help. Any donation, no matter the size is greatly appreciated!!!

This is the last summer for the McQueen car!  He has grown so big I had to pad his knees for him to drive it this year, he just won't fit  by next summer! :)

Kmoney had back surgery on May 15, 2015 for scoliosis and can not be bent or twisted now like we had to getting him in and out of a carseat from the back seat as this could rip loose the hardware placed to help him.  (it was a 6 hour surgery)  His bones are soft since he does not walk which helps create bone strength, this means we have to be extra careful!  A growing rod was placed on one side of his spine and a tether strap on the other to straighten it since it was all the way over pushing on his left lung.

Since the surgery his legs have really tightened up, and we are not able to straighten them all the way, making it hard right now for him to do some of the things he could do before, like sit on a ball.  We have a long road ahead in phyiscal therapy to get the tendons in his legs stretched to the right length so he can use the ball and stander again.  He cries crocodile tears at the gentlest stretches, it breaks my heart!  Please keep him in your prayers. 

Please share our story with your friends!  If 1500 people gave just $20.00 each a handicap van could become a reality for us!!!  We do not know what the future holds, but cherish every moment with our cutest boy ever!  For more of our story visit our facebook page


Please give us a "like" on our page our goal is 1,000 likes!! Thank you so much!!!





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Update 40
Posted by Sharon Brown
15 days ago
We are so very blessed by the support we have received! Only $1229 to go!! We almost have this!!! If anyone knows of an event coming up that would allow us to sell tickets for a TV, please let me know! We have a brand new 50" TV, proceeds raised from the TV will go towards the van payoff!! Thank you to all who have helped us get this far!!
Kmoney & family on a trip to the dentist! This trip would not have been possible without the van! He is 72.5 lbs now!
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Update 39
Posted by Sharon Brown
1 month ago
We are Super Grateful to the American Legion Post 143 and Sons of the American Legion Post 143 Bristol for their generous donations to help with the van!!! We are almost there!!!!!

We also enjoyed the Halloween Party! Thank You everyone at Legion Post 143 for that!!

Halloween 2016! Chase is on the case!!!
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Update 38
Posted by Sharon Brown
2 months ago
On September 14th we introduced Kmoney to the American Legion Riders, Post 143, Bristol. We told them a little about XLMTM, Kmoney and Wheels for Kmoney, our fundraiser for his van. After we left they voted to donate $1000 for the van!! These people are awesome! As Kmoney would say, we are "SUPER GRATEFUL!!" for this generous donation!! THANK YOU SO MUCH!
American Legion Post 143
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Update 37
Posted by Sharon Brown
3 months ago
Wish we would have had a nice sunny day last Saturday, but we didn't! The Nelson's sale turned out to be our worst ever , we did not sell out as we hoped for! $166 from chicken, $46 in donations made it $212 total. While it was not what we had hoped for, 2 things to be grateful for 1. We didn't go in the hole 2. We had a good turnout of volunteers to help this time! God has given me a project, his name is Kmoney! I will continue fighting to meet his needs until the day I leave this earth! Thanks to all who came out for chicken! Thanks to Shawn, Jessica, Andy, Angie, Larry & Pat for volunteering your time! You are awesome & we greatly appreciated it!!
Bristol Homecoming 2013! Kmoney loves trains! He doesn't fit this one anymore!
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 573 total shares
Jo Richmond
26 months ago

Desire to see this happen for the purchase of Kmoney's van to carry his wheelchair.

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$35,121 of $36.3k goal

Raised by 110 people in 31 months
Created April 26, 2014
13 days ago
Karen Roose
16 days ago

Have a blessed Thanksgiving !

Sam Salazar
1 month ago
American Legion Post 143
1 month ago (Offline Donation)

A huge THANK YOU!!! to the American Legion Post 143 for their generous contribution!!!

Sons of the American Legion
1 month ago (Offline Donation)

A huge THANK YOU!!! to Sons of the American Legion, Bristol Post 143 for their generous donation!!!!

American Legion Riders Post 143
2 months ago (Offline Donation)

So Grateful to American Legion Riders - Post 143 for the very generous donation to our van fund! These people are awesome!

Nelsons Chicken Sale
3 months ago (Offline Donation)

Nelson's chicken event August 27, 2016

Nelson's Chicken Fundraiser
7 months ago (Offline Donation)

Nelson's fundraiser went well and the weather was beautiful!! Thank you so much to everyone who came out to buy chicken on Saturday!!! We raised $1500 selling chicken & received $53 in additional donations. And thank you so much to my faithful helpers, Shawn, Jessica & Chris couldn't have done it without you!!

10 months ago
10 months ago (Offline Donation)
Jo Richmond
26 months ago

Desire to see this happen for the purchase of Kmoney's van to carry his wheelchair.

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