Wheels for Kmoney!!!

$30,959 of $35.3k goal

Raised by 103 people in 28 months
Sharon Brown   MIDDLEBURY, IN
Kamarion (ka-mar-e-on) a/k/a Kmoney is a darling 8 year old boy who is in need of a handicap van for transportation in his wheelchair.  He was born with a rare genetic muscle disorder X-Linked Myotubular Myopathy (XLMTM); which causes weak skeletal & respiratory muscles.   In addition to the van we need $3,000 for the lift feature needed on the power wheelchair we are working on getting him.  Insurance will not pay for this feature, "not medically nesssary", however it will allow him to raise his seat to reach things when he is in a non-handicap accessible environment and it will also help us with his transfers as he gets bigger so there is not so much lifting involved!

Kmoney had to have a trach and gtube at 39 days old and at 8 1/2 months old was put on a ventilator due to respiratory insufficency.  He was on the vent for 22 months, gained enough strength to breath on his own, and has been off the vent since Oct 15, 2010. We have been told by the Doctors that when he goes through his teenage growth spurt, his mucsles may not be able to keep up with the growth and there is a chance he will end up losing the strength we have worked so hard to build; he could lose the ability to sit up on his own and end up needing the vent again.  We pray this does not happen and continue to push on with therapy!

50% of the children born with XLMTM do not live to their 1st birthday, but we made it to 7!  Kmoney is in 1st grade, weighs in at 57 lbs, is over 48" tall and is quickly getting to big for a car seat so he will need to be transported in his wheelchair!  He does not stand or walk on his own, but uses a Kidwalk walker, trike, wheelchair, and his Mcqueen car for mobility!  He will soon be upgraded to a power chair which will require that we have a handicap van to transport him.  They  are quite expensive and his family is not able to afford one on their own, so they are reaching out to the community for help. Any donation, no matter the size is greatly appreciated!!!

Update:
This is the last summer for the McQueen car!  He has grown so big I had to pad his knees for him to drive it this year, he just won't fit  by next summer! :)
#weneedabiggercar


Kmoney had back surgery on May 15, 2015 for scoliosis and can not be bent or twisted now like we had to getting him in and out of a carseat from the back seat as this could rip loose the hardware placed to help him.  (it was a 6 hour surgery)  His bones are soft since he does not walk which helps create bone strength, this means we have to be extra careful!  A growing rod was placed on one side of his spine and a tether strap on the other to straighten it since it was all the way over pushing on his left lung.

Since the surgery his legs have really tightened up, and we are not able to straighten them all the way, making it hard right now for him to do some of the things he could do before, like sit on a ball.  We have a long road ahead in phyiscal therapy to get the tendons in his legs stretched to the right length so he can use the ball and stander again.  He cries crocodile tears at the gentlest stretches, it breaks my heart!  Please keep him in your prayers. 

Please share our story with your friends!  If 1500 people gave just $20.00 each a handicap van could become a reality for us!!!  We do not know what the future holds, but cherish every moment with our cutest boy ever!  For more of our story visit our facebook page



www.facebook.com/wheelsforkmoney

Please give us a "like" on our page our goal is 1,000 likes!! Thank you so much!!!

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Update 36
1 month ago
Our next local event will be another Nelson's chicken sale on Saturday August 27 at O'Reillys on Cassopolis St in Elkhart! We will have 600 chicken halves to sell! Come hungry and bring friends! We thank you for all the support!
Kmoney and his sisters ready to celebrate 4th of July!
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Update 35
4 months ago
Nelson's fundraiser went well and the weather was beautiful!! Thank you so much to everyone who came out to buy chicken on Saturday!!! We raised $1500 selling chicken & received $53 in additional donations. And thank you so much to my faithful helpers, Shawn, Jessica & Chris couldn't have done it without you!!
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Update 34
5 months ago
A sleep study Thursday night confirmed Kmoney definitely needs the vent at night, because without it he retains too much CO2 . Another trip to Riley Hospital made so much easier by the van and again I would like to say THANK YOU SO MUCH!! to all who have contributed. We are almost there! Don't 4get our next Nelson's chicken fundraising event April 16, 2016 at O'Reillys on Cassopolis St in Elkhart!! Please spread the word! We need to sell a lot of chicken!!
Kmoney's cool toad hat made for the sleep study!!
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Update 33
7 months ago
We are so very grateful for all of the support received so far!! We are nearing the 2 year mark of fundraising, we were able to get temporary financing for the amount we didn't have which allowed us to purchase a van in April 2015, without it, I honestly do not know how we would be getting him anywhere, he has grown so big! In September 2015 Kmoney had to be put back on the vent, at this time it is nights only; we believe the back surgery May 15 set him back a bit and he was not exhaling all the CO2, the vent helps with that. We are trying to keep him well during the cold and flu season, so far so good! Keep him in your prayers! Our next Nelson's chicken event for those local will be April 16, 2016, please put the date on your calendar!!! Thank you everyone SO MUCH for your contributions!!!! If you know of any local groups that would be willing to donate to our cause, please contact me on our facebook page, I would be happy to bring Kmoney to meet them!
At therapy! Home stander coming soon!
Chillin at his favorite place! Grandmoms
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Help spread the word!
 573 total shares
Jo Richmond
22 months ago

Desire to see this happen for the purchase of Kmoney's van to carry his wheelchair.

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$30,959 of $35.3k goal

Raised by 103 people in 28 months
Created April 26, 2014
NF
$1,553
Nelson's Chicken Fundraiser
4 months ago (Offline Donation)

Nelson's fundraiser went well and the weather was beautiful!! Thank you so much to everyone who came out to buy chicken on Saturday!!! We raised $1500 selling chicken & received $53 in additional donations. And thank you so much to my faithful helpers, Shawn, Jessica & Chris couldn't have done it without you!!

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$200
Anonymous
7 months ago
$500
Anonymous
7 months ago (Offline Donation)
NE
$915
Nelsons Chicken Event
10 months ago (Offline Donation)

October 3rd Nelsons chicken event $842 + donations $73

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NE
$1,855
Nelsons Chicken event
12 months ago (Offline Donation)

July 18, 2015

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MC
$500
Michiana Porsche Club
15 months ago (Offline Donation)

We are very grateful to the members of the Michiana Porsche Club for their very generous contribution to help us with the van! And we thank you Marty for bringing our fundraiser to them!!!

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NF
$100
Nancy Frank
15 months ago (Offline Donation)

Thank you Nancy for helping us out! It is greatly appreciated!!

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RS
$50
Rob & Sarah Steiner
15 months ago
SI
$100
Scott Roth Insurance
15 months ago (Offline Donation)
JR
$100
Jean Roberson
15 months ago (Offline Donation)
Jo Richmond
22 months ago

Desire to see this happen for the purchase of Kmoney's van to carry his wheelchair.

+ Read More
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