My life's reason in need of kidney transplant
Donation protected
-Update-
Hello,
My name is Joseph Misukonis and I'm Ti's spouse. I just wanted to speak on how much this woman means to me. We as family unit when all this occurred banded together Mother, Father, Brother and us of course. My parents sold their house, brother moved here and we all moved in together to conserve funds. My father has copd, emphysema and takes full time care. My Brother which has been helping with everything was diagnosed with lung cancer 6 months ago, then 3 months ago shattered his left leg and is now bed ridden for foreseeable future that we are now taking care of also. In saying all this I wanted to outline just how much my wife does. She never complains regardless how much the dialysis hurts or when it destroys her ability to get restful sleep now going on almost 3 years. Ti gets up every morning no matter what with a smile on her face and a positive attitude. We have been hit hard and and her resolve never wavers. I have no clue what I would do during these times of great difficulty if I didn't have her always pointing out how fortunate we are to have what we have and to not dwell on negative. Ti never wants anything for herself and when she does get anything extra it is sent to support her 85 year old mother or to a local orphanage in Depok where she grew up. I have never been so in love in my life and the thought of losing her tears me apart everyday. We were supposed to get new insurance in October during open registration but our social worker never filed the proper paperwork and withheld information for months from us and now we are ineligible. We can not touch state or federal aid for 6 years from what our lawyer informed us. This means my wife has to endure this at the earliest for 3 years more. Our insurance pays for monthly supplies but will not cover the cost of transplant which means we would have to cover 70,000 for copay from our understanding to even be placed on the National Donor list. We have multiple friends that have offered with compatible blood types but without insurance to cover they won't even test them. Thank you so much for viewing our campaign and we wish you and yours good health.
It all started about mid-October of 2017. My wife and I had just gotten married for the second time in traditional customs in Indonesia with her family. Ti has had blood pressure problems in the last 5 years and was prescribed medication to alleviate the issues with no further warnings. She started getting really sick, light-headed, darkness around the eyes, lethargy, just not her general self. We cut our honeymoon short and went back to Bermuda her place of employment for the past 5 years and also the residence of her doctor. They ran test after test and later concluded she had stage 5 renal failure, no previous discussions of kidney disorders or damage were ever talked about. The doctor mentioned once or twice she had small kidneys but that was all that was said over the matter. Presently she can no longer work and her insurance was cut since her change of status is in limbo she does not qualify for state assistance of any kind or Champ V.A. We have expended all of our savings prior to these events with a down payment on a house and property and the remodel I am doing myself. That does not include the rush to pay 6000 to a lawyer for the change of status to start the immigration process. I have borrowed in the upper range of 20 thousand from my parents for the lawyers and medical so far out of pocket. We have found an amazing nephrologist that orders her labs and imaging that we pay for but consults us for free on his lunch time now. This gentleman also found us a Dialysis company that is covering her treatment costs starting 2 weeks ago and the pd treatment. What we are asking for is help with medication and lab cost and funds to go toward the entire cost of the copay of a kidney transplant that averages out at 230,000. If you can only help us with a kind word or prayer that would be just as appreciated. God Bless You.
Hello,
My name is Joseph Misukonis and I'm Ti's spouse. I just wanted to speak on how much this woman means to me. We as family unit when all this occurred banded together Mother, Father, Brother and us of course. My parents sold their house, brother moved here and we all moved in together to conserve funds. My father has copd, emphysema and takes full time care. My Brother which has been helping with everything was diagnosed with lung cancer 6 months ago, then 3 months ago shattered his left leg and is now bed ridden for foreseeable future that we are now taking care of also. In saying all this I wanted to outline just how much my wife does. She never complains regardless how much the dialysis hurts or when it destroys her ability to get restful sleep now going on almost 3 years. Ti gets up every morning no matter what with a smile on her face and a positive attitude. We have been hit hard and and her resolve never wavers. I have no clue what I would do during these times of great difficulty if I didn't have her always pointing out how fortunate we are to have what we have and to not dwell on negative. Ti never wants anything for herself and when she does get anything extra it is sent to support her 85 year old mother or to a local orphanage in Depok where she grew up. I have never been so in love in my life and the thought of losing her tears me apart everyday. We were supposed to get new insurance in October during open registration but our social worker never filed the proper paperwork and withheld information for months from us and now we are ineligible. We can not touch state or federal aid for 6 years from what our lawyer informed us. This means my wife has to endure this at the earliest for 3 years more. Our insurance pays for monthly supplies but will not cover the cost of transplant which means we would have to cover 70,000 for copay from our understanding to even be placed on the National Donor list. We have multiple friends that have offered with compatible blood types but without insurance to cover they won't even test them. Thank you so much for viewing our campaign and we wish you and yours good health.
It all started about mid-October of 2017. My wife and I had just gotten married for the second time in traditional customs in Indonesia with her family. Ti has had blood pressure problems in the last 5 years and was prescribed medication to alleviate the issues with no further warnings. She started getting really sick, light-headed, darkness around the eyes, lethargy, just not her general self. We cut our honeymoon short and went back to Bermuda her place of employment for the past 5 years and also the residence of her doctor. They ran test after test and later concluded she had stage 5 renal failure, no previous discussions of kidney disorders or damage were ever talked about. The doctor mentioned once or twice she had small kidneys but that was all that was said over the matter. Presently she can no longer work and her insurance was cut since her change of status is in limbo she does not qualify for state assistance of any kind or Champ V.A. We have expended all of our savings prior to these events with a down payment on a house and property and the remodel I am doing myself. That does not include the rush to pay 6000 to a lawyer for the change of status to start the immigration process. I have borrowed in the upper range of 20 thousand from my parents for the lawyers and medical so far out of pocket. We have found an amazing nephrologist that orders her labs and imaging that we pay for but consults us for free on his lunch time now. This gentleman also found us a Dialysis company that is covering her treatment costs starting 2 weeks ago and the pd treatment. What we are asking for is help with medication and lab cost and funds to go toward the entire cost of the copay of a kidney transplant that averages out at 230,000. If you can only help us with a kind word or prayer that would be just as appreciated. God Bless You.
Organizer
Rifna Misukonis
Organizer
Huntsville, TX
