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Verity’s leukemia support fund

$4,360 of $45,000 goal

Raised by 49 people in 2 months
My daughter Verity had some very concerning and scary blood tests and she was transferred to OHSU the night of August 23rd and there was shortly diagnosed with leukemia. We have started to prepare for the onslaught of bills, while also trying to keep our finances stable, as Verity and Atina (her mother) have to stay close to the hospital for this first month. We live and David works four hours away from Doernbecher Children’s Hospital where Verity is being treated. The average cost of care is scary high, and on top of that, there are a slough of “hidden costs”, no one can be prepared for this nightmare. Thank you in advance for your prayers and financial support.

There have been a number of people who have expressed interest in helping outside of here. If that is you please contact David via text or call @ ‭(541) 404-9528‬ or myself via text or call @ (541) 404-7096 for how you can do that. Also know there are other ways to help besides financially, once we are home something as simple as a visit, running an errand or picking something up for us is huge!
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This update is going to be more about the nitty gritty part of our journey; finances and a little bit about Verity’s progress. To start off I want to let you know that David and I are so very grateful and thankful for all of the support and generosity we have received thus far. As some of you I’m sure have learned we have what is called hidden expenses those some of those expenses are prescriptions (we are up to an expenditure of $500+), weekly sedations (each time she is sedated we get a separate anesthesia bill), the cost of gas to travel back and forth from home to the place we stay and then to OHSU and back (an extra $292 over our normal gas budget), and the cost of eating away from home (usually about $150 for most trips). But over those hidden costs we have spent money on other things to either make our and Verity’s lives more comfortable or to keep normal thing running. For instance we have to do twice as many oil changes, air intake filter changes and tire inspection and rotations than we would normally. Also with Verity on longer having hair we needed to help her find a way to feel girly and pretty, to do that we let her decide what accessories to buy (lucky for us she chose head bands and wraps over more dresses), we ended up with 10 brand new bands and wraps of her color choice. Of course we haven’t forgotten about Merit and have made as much of an effort to either include him where possible or let him pick out something new because he is just as important as Verity. To add to all of those expenses we also have had to put Verity back in diapers due to her loss of mobility, and, because of her chemo treatments we have to wear gloves to change her meaning we are also buying medical gloves. All of this has understandably cost us a large $$ amount, so now those of you interested know where the money has/will go durning this time.

In more interesting news Miss Verity is responding well to treatment and has started to perk up even more! We did however find out yesterday that her immunity counts are a bit lower than the doc would like to see before we can move on to the next course of chemo treatments. Thankfully all that means is a change in her everyday meds and she should spring back to a better number by next week, please, please be praying that she does so that we can stay on our current treatments course.

Again and I can’t express it enough thank you! Please keep sharing, praying and if you can helping us. We know we don’t fight this alone and Verity knows she is loved thanks to all of you.
She LOVES her new “pretty pretties”!
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So. We are bald now. After her bath last night and the hair that fell out this last week it was time, also she was constantly complaining about being itchy (from all the loose hair) so David and I decided to shave what was left. This was only moments after and she was happy and not itchy lol! Today is this weeks treatment day which includes a lumbar puncture, so far this has been the worst for her as it causes a lot of back pain and stiffness. Verity amazes me everyday by still having a smile on her face, wanting to play, and trying so hard to regain her strength to walk again!
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A few people have asked the type of leukemia that Verity has; she has ALL (Acute Lymphoblastic Leukemia) it is the most treatable type of childhood cancer. She has higher than a 90% chance of surviving and living a fairly “normal” life.
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And we are released to go home! Her doctors think that Verity’s fever is due to her flu vaccine and or a cold, she has been given very strong antibiotics and a clear bill go all the way home! PTL!!
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$4,360 of $45,000 goal

Raised by 49 people in 2 months
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BS
$50
Brenda Slagle
19 days ago
KG
$50
kenneth griffith
20 days ago
DH
$50
Della Hill
29 days ago
LC
$100
Leanne Clark
1 month ago
$500
Anonymous
1 month ago
KM
$20
Kimberly McCoy
1 month ago
KG
$50
kenneth griffith
1 month ago
KP
$50
Kristen Proehl
1 month ago
KF
$50
Kristin Ferguson
1 month ago
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