Craig & Marc's Medical Expenses
Donation protected
We have set up this fund to help offset the medical and equiptment expenses of having 2 boys with Duchenne Muscular Dystrophy (DMD).
On February 6, 2008 at the age of 6 our son Craig was diagnosed with Duchenne's Muscular Dystrophy. Sadly Craigie's younger brother Marc was also diagnosed on September 19, 2008 at the age of 2.
There are many days throughout the year that have become awareness days for Duchenne Muscular Dystrophy.
The week of Valentine’s Day is Duchenne Muscular Dystrophy Awareness Week. Lime green is the awareness color for Muscular Dystrophy. We would like you to show your support and help increase awareness by wearing green. We chose this week to be the week we support the most in our family.
Craig 17 years and Marc’s 14 years devilish smiles contradicts what is going on inside their bodies, their muscles are deteriorating at an alarming pace. Unless a cure or treatment can be found for Duchenne Muscular Dystrophy, most boys will lose their ability to walk by adolescence, unfortunately Craigie has lost his ability to walk Marc is still able to walk short distances. Subsequently they lose all muscle function, like smiling, hugging, and even scratching an itch. Like all boys with Duchenne, they will die from respiratory or heart failure. Unfortunately this happens to most of them in their late teens or early twenties.
Duchenne Muscular Dystrophy is the most common fatal genetic disorder to affect children around the world. Children with DMD cannot produce dystrophin, which is a protein necessary for muscle strength and function. As a result, every skeletal muscle in the body deteriorates. Although Duchenne is the most common fatal genetic disorder to affect children, unfortunately there is no cure at this time.
Right now, Marc is an active child, who adores swimming, running and playing in the backyard which is now harder for him to do, Marc loved to play baseball and soccer, he also loves football too. Marc’s favorite team is the Oakland Raiders. Craigie also played baseball, which he loved to do, he also loves football his favorite team is the Philadelphia Eagles. He also attends all of the Kean University home games. They have adopted the boys as honorary Cougars.
While the disease has just started to show its devastation, in early November of 2014 Craig has lost the ability to walk he is now in a wheelchair full time.
The harsh facts about DMD are hard to believe:
DMD has a 100% fatality rate.
Most DMD kids demise in their late teens or early twenties.
Most boys with DMD are in a wheelchair, between 10-12 years old.
DMD is associated with respiratory failure, heart failure, and debilitating orthopedic complications.
Families all over the world are suffering from the effects of Duchenne, the most severe form of muscular dystrophy.
Approximately 1 in 3,500 boys is born with DMD.
Estimated 15,000-20,000 children in America are afflicted.
DMD affects boys of every ethnicity and geographic location.
One third of all DMD cases are the result of random in utero mutation, with no warning before the affected baby is born.
One of our missions is to spread awareness for Duchenne Muscular Dystrophy.
All the money raised will go into a trust fund for Craig and Marc to be used for the expanding medical expenses and equipment they will need.
So PLEASE keep in mind that our goal will not be easy. There will be lots of money to raise, lots of fundraisers to organize and an endless amount of time to be donated. It is all definitely worth it.
We have just renovated our house to have it handicapped accessible, we installed an elevator, accessible bathroom and showers. We had a pool lift donated with money raised.
Thank you for all of your support.
On February 6, 2008 at the age of 6 our son Craig was diagnosed with Duchenne's Muscular Dystrophy. Sadly Craigie's younger brother Marc was also diagnosed on September 19, 2008 at the age of 2.
There are many days throughout the year that have become awareness days for Duchenne Muscular Dystrophy.
The week of Valentine’s Day is Duchenne Muscular Dystrophy Awareness Week. Lime green is the awareness color for Muscular Dystrophy. We would like you to show your support and help increase awareness by wearing green. We chose this week to be the week we support the most in our family.
Craig 17 years and Marc’s 14 years devilish smiles contradicts what is going on inside their bodies, their muscles are deteriorating at an alarming pace. Unless a cure or treatment can be found for Duchenne Muscular Dystrophy, most boys will lose their ability to walk by adolescence, unfortunately Craigie has lost his ability to walk Marc is still able to walk short distances. Subsequently they lose all muscle function, like smiling, hugging, and even scratching an itch. Like all boys with Duchenne, they will die from respiratory or heart failure. Unfortunately this happens to most of them in their late teens or early twenties.
Duchenne Muscular Dystrophy is the most common fatal genetic disorder to affect children around the world. Children with DMD cannot produce dystrophin, which is a protein necessary for muscle strength and function. As a result, every skeletal muscle in the body deteriorates. Although Duchenne is the most common fatal genetic disorder to affect children, unfortunately there is no cure at this time.
Right now, Marc is an active child, who adores swimming, running and playing in the backyard which is now harder for him to do, Marc loved to play baseball and soccer, he also loves football too. Marc’s favorite team is the Oakland Raiders. Craigie also played baseball, which he loved to do, he also loves football his favorite team is the Philadelphia Eagles. He also attends all of the Kean University home games. They have adopted the boys as honorary Cougars.
While the disease has just started to show its devastation, in early November of 2014 Craig has lost the ability to walk he is now in a wheelchair full time.
The harsh facts about DMD are hard to believe:
DMD has a 100% fatality rate.
Most DMD kids demise in their late teens or early twenties.
Most boys with DMD are in a wheelchair, between 10-12 years old.
DMD is associated with respiratory failure, heart failure, and debilitating orthopedic complications.
Families all over the world are suffering from the effects of Duchenne, the most severe form of muscular dystrophy.
Approximately 1 in 3,500 boys is born with DMD.
Estimated 15,000-20,000 children in America are afflicted.
DMD affects boys of every ethnicity and geographic location.
One third of all DMD cases are the result of random in utero mutation, with no warning before the affected baby is born.
One of our missions is to spread awareness for Duchenne Muscular Dystrophy.
All the money raised will go into a trust fund for Craig and Marc to be used for the expanding medical expenses and equipment they will need.
So PLEASE keep in mind that our goal will not be easy. There will be lots of money to raise, lots of fundraisers to organize and an endless amount of time to be donated. It is all definitely worth it.
We have just renovated our house to have it handicapped accessible, we installed an elevator, accessible bathroom and showers. We had a pool lift donated with money raised.
Thank you for all of your support.
Organizer
Craig Gina Manning
Organizer
Clark, NJ
