JAMIE'S SURGERY FUND 2015
Donation protected
A last ditch attempt to raise funds for ground breaking surgery for a young Oldcastle student with a serious visual impairment, is currently underway in Oldcastle.
A local fund raising committee has already raised €6000 for Jamie Power Disney, but a further €19,000 is needed by mid August 2015 if he is to receive the treatment he needs.
Jamie was born with bi-lateral optic nerve atrophy and a cure is finally possible - he is due to have the surgery in Florida on 1st September, if he has the funds in time.
This is a once-in-a-lifetime opportunity to get ground-breaking stem cell surgery for Jamie, who despite his disability, has lived a very full and active life and even played Gaelic football and Soccer at cup winning level...
Despite his very limited vision - he could just make out the outline of goalposts ad the colours of other footballers jerseys but determination made up the shortfall and few people knew about his visual impairment.
His mother Angie Power Disney explains that he is currently registered disabled although he always tries to hide his disability and unless he receives the treatment he will never be able to drive or do many other tasks people with normal vision take for granted.
He did his leaving Cert this year and hopes to go to college - and it is the committee’s hope that when he starts college, he will have normal vision.
He has a once in a lifetime chance as he has been invited to take part in a clinical trial which is having tremendous results.
The treatment would normally run into hundreds of thousands of euros but because he has been invited to join the trial he has just been asked to provide a token payment of €20,000. He would also need around €5000 for travel and accommodation for the duration of the treatment.
As the family rely on his mothers carers allowance and his disability payment, getting the fund together themselves is impossible.
Angie explains that the revolutionary surgery involves harvesting Jamie’s own stem cells though a lumbar puncture and using them to treat his eye condition.
“They have been having phenomenal results with this treatment,” she says.
“We would really love if he could have the treatment and be able to start college as a normally sighted person.”
“Jamie could have gone to a school for children with visual impairment in Dublin, but he chose to go to school locally with his older brother, discreetly using visual aids and a special needs assistant at school.
“He has always fought against his disability and even played soccer and Gaelic and is on the Oldcastle minor team, which recently won the league final.
“This is a once-off chance for Jamie and we are appealing for donations.”
Our target to cover travel and accomodation for Jamie and his Mum to Fort Lauderdale as well as the surgery is 25,000 euro...we have raised 6,000 but still need 19,000
IF YOU CAN HELP IN ANY WAY WE WOULD BE THRILLED AND WILL SHARE JAMIE'S PROGRESS ONGOINGLY WITH APPRECIATION
A local fund raising committee has already raised €6000 for Jamie Power Disney, but a further €19,000 is needed by mid August 2015 if he is to receive the treatment he needs.
Jamie was born with bi-lateral optic nerve atrophy and a cure is finally possible - he is due to have the surgery in Florida on 1st September, if he has the funds in time.
This is a once-in-a-lifetime opportunity to get ground-breaking stem cell surgery for Jamie, who despite his disability, has lived a very full and active life and even played Gaelic football and Soccer at cup winning level...
Despite his very limited vision - he could just make out the outline of goalposts ad the colours of other footballers jerseys but determination made up the shortfall and few people knew about his visual impairment.
His mother Angie Power Disney explains that he is currently registered disabled although he always tries to hide his disability and unless he receives the treatment he will never be able to drive or do many other tasks people with normal vision take for granted.
He did his leaving Cert this year and hopes to go to college - and it is the committee’s hope that when he starts college, he will have normal vision.
He has a once in a lifetime chance as he has been invited to take part in a clinical trial which is having tremendous results.
The treatment would normally run into hundreds of thousands of euros but because he has been invited to join the trial he has just been asked to provide a token payment of €20,000. He would also need around €5000 for travel and accommodation for the duration of the treatment.
As the family rely on his mothers carers allowance and his disability payment, getting the fund together themselves is impossible.
Angie explains that the revolutionary surgery involves harvesting Jamie’s own stem cells though a lumbar puncture and using them to treat his eye condition.
“They have been having phenomenal results with this treatment,” she says.
“We would really love if he could have the treatment and be able to start college as a normally sighted person.”
“Jamie could have gone to a school for children with visual impairment in Dublin, but he chose to go to school locally with his older brother, discreetly using visual aids and a special needs assistant at school.
“He has always fought against his disability and even played soccer and Gaelic and is on the Oldcastle minor team, which recently won the league final.
“This is a once-off chance for Jamie and we are appealing for donations.”
Our target to cover travel and accomodation for Jamie and his Mum to Fort Lauderdale as well as the surgery is 25,000 euro...we have raised 6,000 but still need 19,000
IF YOU CAN HELP IN ANY WAY WE WOULD BE THRILLED AND WILL SHARE JAMIE'S PROGRESS ONGOINGLY WITH APPRECIATION
Organizer
Angela Power-Disney
Organizer
