HoPE for Leyton
Donation protected
Leyton was born with a rare terminal brain condition called Holoprosencephaly (HoPE is a very unique name we refer it to) She has many other conditions due to her main condition like Diabetes Insipidus, microcephaly, severe Epilepsy, Hypothyroidism, dystonia, she is not blind however her nervess are so small she can only see lights and shadows, and her hearing is perfect! She is beating the 1% odds given. Last January she was hit with RSV pneumonia and the rhinovirus, she came home after 26 days but we were told to plan her funeral. A year later she is surpassing the odds and living and thriving! We appreciate all the love, support, and prayers!!!! We have been very blessed!!! As always we appreciate ongoing prayers for our miracle!
Organizer and beneficiary
Jennifer Arron Hull
Organizer
Claremore, OK
Jennifer Hull
Beneficiary