Liam's Heart - By Ivonne Roberts

$1,120 of $5,000 goal

Raised by 22 people in 39 months
Mary Beth L
on behalf of Sean Caron
Reaching Out for Help to Heal Baby Liam's Heart by Ivonne Roberts
I have recently met a family and something spiritually inside of me has made me want to reach out to you and ask very humbly for assistance in aiding, strengthening and healing baby Liam, during struggling times. This smart, sweet, joyful, and loving baby boy was named "Liam" or "Strong Willed Warrior" when he was born on September 12, 2013. He is nearly 21 months old and was a miracle in the first place! Liam was born with Mosaic Down Syndrome and a Congenital Heart Defect called Atrial Septic Defect and has at least two (2) holes in his heart. Liam is developmentally behind and at first had very low tone. His upper body was exceptionally low in tone. He has come a long way and is getting stronger all the time. At 21 months, Liam is starting to Army crawl, say a few words, stand with assistance and rolls all over the house!
Liam's cardiologist, Dr. Joseph Ludwick of Children's Heart Center of Nevada, has been keeping a close eye on his heart, since birth. Currently, the holes are not closing and time is nearing that they will have to be repaired and closed. If not repaired, Liam can develop Hypertension and even Eisenmenger's Syndrome. Both increase mortality rates, significantly. The family will be driving from Reno to Las Vegas this fall for procedures at Sunrise Children's Hospital. Liam will first have a procedure to to look closer at the size of the holes with a camera guided down his esophagus to determine if devices are likely to be able to be attached to the holes. They will be attempting to use a catheter method to reach his heart and close the holes with small devices. While attempting to do so, there must be enough tissue on each side of the hole for attachment, among other factors. Hopefully, this method works and he can avoid having to endure open heart surgery.
All funds are intended for Liam's nutrition and care leading up to the procedure(s) and for recovery. In addition, any funds would cover the family's costs for the trip to Las Vegas in fall and copays.
If you can be so kind and contribute any amount towards this loving family who is desperately trying to heal their little boy's heart it would be greatly appreciated.
Times are rough for most people right now, the last thing anyone with a child needing heart repair should worry about are finances. Thank you so much for stopping by and reading about #LiamsHeart.
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I also learned that my little man loves travel and more than ever before, I learned he loves people! ALL! A plastic surgeon closed him up. And, we had Dr. Ciccolo the best Heart Surgeon #1!
Our 2nd Stop RMH Vegas 10/15!
First stop! Meet Grandma (Beths)!
Day 2 Postop - Healing well!
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I learned a few things about my little man during this trip. He shares with other very well! At Ronald McDonald House, he played with a 3 year old girl for a bit and shared great! While she, not quite so good. He is such a sweet little guy. I expect much of that to carry through the years to come! :)
Healing at home! 8D after! 10/28!
Almost same activity! 10/28 8 days!
Resting angel! 10/23 3D after-Hosp
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Liam took a long time to come out of the anesthesia. Kids with any form of Downs often need more. He also underwent labs before surgery. Surgery only took 1-1/4 hours! The hardest part as a mom, was walking him to the doors of surgery and handing him over. I really thought a catheter method was going to happen. But, now, at least I know he is safe and can be healthy and active!!!
SLEEPY & FLEXIBLE ha10/18 Bonnie Springs
First fluids 10/21 1 day After Surgery
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Again, I'm sorry for the delay in an update! Liam did so well, he amazed the docs & nurses at Sunrise Children's Hospital and was out of there in 4 days! We had to stick around for a couple more days before travel to be sure he was stable for it. Since then, he did have a minor infection at the bottom of the incision. But, we went to Dr. Ludwick early and antibiotics were given. He will be fabulous and healthy! Thanks for the power of prayers!!!
Day 1 Open Heart Surgery 10/20
Day 3 Smiling! Healing quick! 10/22
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Read a Previous Update
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$1,120 of $5,000 goal

Raised by 22 people in 39 months
Created May 21, 2015
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34 months ago
Dan Williams
35 months ago

Best wishes!

Robert&Joy Wilkins
36 months ago

Liam is a gorgeous child and deserves a chance at a normal, healthy life! We wish we could help more. I hope you don't mind, but I would like to challenge each of your Facebook Friends to donate just $1 to your campaign.

Julie Cummings
36 months ago

Heal Liam Heal! You can do it!!!

Windi Braden
36 months ago

I am so glad to hear how well Liam is doing. He is so fortunate to have you as parents. Here is another small contribution to your family~ 5 is the number of MAN, our ability in manifest form~ so to the care of his Earth Suit I offer this to support forhis journey this lifetime in this body. Bless you Liam.

Robert Wilkins
37 months ago

Joy and I hope this small contribution will help get others to contribute within the CollaborateUSA family.

Jeff Hays
37 months ago

Always in my prayers my friends. YAH bless

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