Tim Scott vs. Brain Cancer

$2,000 of $50,000 goal

Raised by 28 people in 46 months
Cindy Scott Day
on behalf of Zachary Scott
Three months ago, my sons' dad Tim Scott was diagnosed with Glioblastoma (grade 4). The tumors were surgically removed (mostly) , and he completed rounds of radiation and chemotherapy. Prognosis has never been good. There's no cure, and treatment only buys time.

In early May, Tim suffered a sudden setback. He's been referred to Northwestern University Hospital in Chicago for clinical trials. His first appointment is five days from our starting this fund. Meanwhile, his care rests solely on his family's shoulders.

Tim ran out of money in March, and he must have round the clock care. Currently, we all take turns staying with him. But Indiana has been slow to approve benefits, and this has created a substantially financial strain on the family. Even when benefits are approved, there will be many costs associated with his care that insurance won't pick up.

We're the kind of family that has always done for ourselves, but this is far bigger than we can handle alone. We're hoping this fund might bring attention not only to our sitution but to many other families who suddenly find themselves in impossible battles.

Among what is needed:

(1) Help with Tim's living expenses. He has not been able to work since the diagnosis was made. Because he is 62, he was able to take an early retirement, but it is a small check and doesn't meet his monthly living expenses. He's filed for disability benefits, which have not yet been approved. Until approval, he does not qualify for Medicare or Medicaid. His insurance is pretty awful, and Indiana is one of those states that doesn't have expanded Medicaid. As a result, he's falling in the cracks -- deep, deep in the cracks.

(2) A dependable vehicle that sits at least six people for Zac and his family, who live closest, to transport Tim to medical appointments. (He hasn't driven since the diagnosis three months ago.) Jenni and Zac have three children and live in a crowded two-bedroom apartment, so Tim can't move in there. At present, Jenni has been staying with Tim during the day all week, Zac takes the night shift, and Jake and Kasia come in from the Chicago area on weekends. I too have been driving in most weekends from Illinois, a 200-mile trip each way. Currently, they have to rent a van to make any trips, such as the one this week to Chicago to look into clinical trials.

(3) Hired help to fill in holes. Jenni (who is tiny) has done much of the care up until now, but she isn't strong enough to manage it safely anymore and Zac has taken over. The stress has affected our young grandchildren, ages 14, 7, and 4. This won't be possible very much longer. There are a lot of us helping here, but realistically, we have to take care of everyone's needs. This is a marathon (if we are lucky), not a sprint.

Tim is a good guy. He's always been there for everyone else. Now it's time for us to be here for him. Help us do that please.
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So sorry for the delay in updating this site. We've had some glitches with logging on. Tim had his second brain surgery yesterday and is sitting up, talking okay and eating well. He was admitted Sunday because he wasn't able to walk. The neurosurgeon said another resection was needed for his best chance for better quality of life. The surgery was much more aggressive than the first and went deeper into the brain. The family is exhausted, as up until now all care has rested on our shoulders, especially my sons and their families. Medicaid was approved July 1. Assisted living is needed but difficult to find with only Medicaid funding. Zac and Jenni are down to one vehicle - Jenni's jeep has been shipped off to the jeep graveyard. They've plowed through thousands of dollars of savings that was planned for a house. Savings have been wiped out, and the family of five remain in a two-bedroom apartment. Jacob left a new job entirely to care full-time for his dad. He's running on empty. We're hoping for assisted living, but if we bring Tim home, we're going to have to find a first floor apartment closer to Zac and Jenni. Here's a photo of Tim with our grandchildren shortly before surgery yesterday.
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With Father's Day coming up tomorrow, I have to say how proud I am of our sons, Zac and Jacob, who have stepped up to the plate to care for their dad. They perform the most intimate of tasks with tenderness and devotion. And yet here we are, nearly five months into this adventure, and money has run out. Zac has plowed through thousands and thousands of dollars of his own savings. Jacob gave up a new job because he needed to be with his dad and help care for him. Tim has not worked since his diagnosis on February 4 and can't afford his basic living expenses, let alone these new medical expenses. He struggles to walk. He's talking better now, but he is very weak and there are balance issues. And still no word on disability. Tim needs to be in assisted living at this point, but his insurance covers none of this. He spent the past week with me in Illinois, and perhaps will return back with me for the rest of the month. Please continue to think of us as we go through this time. Where is that safety net everyone talks about?
Zac and Jake with Tim before his surgery
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We celebrated our grandson Jaxon's 8th birthday tonight, and Tim is enjoying watching his Blackhawks battle it out for the Stanley Cup. The family is still waiting some decision on disability benefits, Medicaid, or whatever will help us through this 24/7 care burden. Both of our sons, Zac and Jacob, are shouldering almost everything. We are so very grateful for the support of our generous friends. Honestly, I don't know how we possibly could have gotten through the past month without you all.
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We are simply blown away by your generosity, friends. And so many people we don't know, don't know how to reach to thank. This Memorial Day weekend, I would like to invite everyone to share Tim's story on their Facebook pages or other social media. Please consider giving even just a small gift - the price of a Starbucks coffee - so that we can tally a high number of contributors. My sons are feeling very alone and isolated by the weight of their dad's care right now. It would be very helpful for them to see that there are many, many people who care and are in this fight with us. You have no idea how much your thoughts mean during a time like this. Thanks. <3
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$2,000 of $50,000 goal

Raised by 28 people in 46 months
Created May 9, 2015
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43 months ago
44 months ago
Shari Becht
44 months ago

Best wishes for everything to go well with the latest surgery and a lot more time together as a family. Sending strength and hope to you all.

Michelle Lesco
44 months ago

Any friend of Tracy Goode's is a friend of mine. Sending love to your family from me, Major League Eating, and Ribfest Chicago.

44 months ago (Monthly Donation)
Ann Rodgers
45 months ago

You and the whole family are in my prayers.

Christa Staples
45 months ago

praying for all of you. The burden sounds unreal. But so wonderful you are all working together. Thanks Anna for posting!

Tonya Moore
45 months ago

Radio Tim and monkey hand.....we had some good times together! Hang in there, buddy!

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